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07-27-2009, 07:10 PM
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#21
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Not much clutter here Steph, I am a neat freak but I usually decorate through the seasons and that sort of stopped. This does not help the blues and I decided that I have to stay focused and strong, I cleansed not only my home but my soul. We are not sure how things look right now in the brain but I have started decorating for fall. Our aim is to conquer but if that is not in the cards, he would really enjoy another birthday (Nov 27th). Right now we will celebrate our favorite time of year on our own private terms, kind of enjoying it early just in case.
Did I tell you all lately that this man totally amazes me? He is a fighter in every sense of the word. Oh please do not think for one moment that we have given up. No, just gearing up. Changes are a-gonna happen in his regime but we are in it to win. He is getting stronger by the day and almost ready to restart.
So, Humpty Dumpty has put herself back together again and I am ready to help him conquer! Touche'!!>>Believe51
Thanks for caring about us like you do, you help us to stay strong, hopeful and able to live through this all.
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-27-2009, 07:42 PM
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#22
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Ed and Marie....Just wanted to say "hi" and give you cyber hugs before I go to bed.
Sleep well you two....asking God to give you peaceful rest this night.
Love and gentle hugs,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-27-2009, 07:50 PM
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#23
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Marie,
I continue to keep you both in my thiughts and prayers. Love and blessings to you.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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07-28-2009, 11:42 PM
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#24
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Re: Hey, Marie
Hey Princess! thinking of you and Ed also....
I WISH i could send my daughter over to you. She is a certified music therapist and I KNOW she would do so well with you. She plays guitar and sings.
She played in the waiting room hospital when i was in surgery for MANY MANY hrs and late into the night some of the kids also waiting for their loved ones would come up and sit by her. When she stopped playing the security guard said it was really nice and wished she would continue.
Take care.
Music is great therapy for the soul!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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07-29-2009, 09:53 AM
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#25
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Guest
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Re: Hey, Marie
Maire,
My dear girl, you are amazing. You are my hero. I pray and pary for you and Ed. My heart just aches for you two.
Please know that I love you both and if you ever need me, just call 508-527-7584.
SnufflesMom
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