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08-13-2006, 06:49 AM
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#1
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Appreciate your good wishes
I want to thank everyone for all of their good wishes and support. I love you all.
Let's all pray for some good results from this new drug for all of us.
Sandy H and Luann, its so good to hear that you are both so close now to joining the study. Good luck to you both and a speedy process.
I am actually going to spend the day today thinking and getting ready for this trip. YIPEEEEEEE
Take care.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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08-13-2006, 08:33 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Irene,
It sounds as if you are doing well handling this combo so far. Now enjoy all the preparations for your trip and have lots of olive oil while you are there. My daughter went on her honeymoon to Italy two years ago. She said the fresh figs were delicious in September.
Best wishes,
Barbara H.
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08-13-2006, 11:16 AM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Irene,
Congratulations on finally receiving the Tykerb. You are now the official explorer for this group. Please keep us informed as I'm sure many of us will be following down the same path. Enjoy your vacation!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-13-2006, 11:27 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Woo-hoo! To finally have those little puppies in hand - what a relief! I'm joining you in the prayers that this drug will bring miracles for all of us, especially you and those so close now to starting. Have a wonderful trip.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-13-2006, 01:29 PM
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#5
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Senior Member
Join Date: Nov 2005
Posts: 943
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Praying the drugs work miracles for you. Go girl.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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08-17-2006, 09:17 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Irene,
I've been following your notes here about your ordeal to get approved.
I'm gald that you got it thru your perseverence.
God Bless, Have a good trip
XOXO
MCS ( maria)
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08-18-2006, 04:45 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Irene-
Welcome to the club. I get scanned net week, so keep your fingers crossed.
I am so glad you were able to get it before your trip - now go and have some gelato, espresso and pasta for all of us!
Take care,
Shell
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