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Barbara, Your right, only my pulmonary doctor seems to really be concerned about me. Its interesting how he is the ONLY one involved in my care that is NOT in this cancer center I go too. He is seperate from them and in fact I HAD to get a special authorization to see him through my HMO. I requested to see him since he FOLLOWED my care when I landed in the hospital from chemo. (Low ANC) He saw me about twice a day at that time for the entire 10 days. So my HMO let me go out of network to see him since he knew my case/problems.
My entire cancer team are all on the same page...meaning, who cares if I die. But he is NOT involved or tied to them and YET HE DOES CARE. He did NOT have to go to the tumor board meeting about me. I asked that he be invited. He actually went and this is one very busy doctor. I wish my other doctors at this center cared even a little bit of what he does! He runs his practice and does hospital rounds every day. Yet he made time to go to the meeting about me and my lungs. He is a OLD SCHOOL doctor. The kind I can't seem to find at this place anymore.
I do have an appt with him but its not until the end of the month. Maybe I can get in sooner since he is the ONLY one that seems to care. Thank you Barbara for your reply and support. I am just feeling so down I can't stand it. I hope their happy now.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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