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08-10-2006, 04:57 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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I'm Sorry but...
We've had to make several changes to our message boards. We have become the target for various spammers recently and as a result I have been deleting several messages a day for the last few weeks. This has neccesitated the following changes to our boards:
1. Newly registered members must submit a valid email address. In turn they will receive an email which they then must confirm before they can post on the bords.
2. Guests will no longer be able to post messages or respond to mssages.
I also need several volunteers to help moderate the boards. If they see any spam posts, they will have the power to delete them.
Also, when choosing Usernames and/or passwords, keep them simple and easy to remember. Some suggestions are: husbands name, childs name, last 4 digits of your phone number.
I am sorry to have to make these changes but I have no alternative. The HER2 Support Group will be placing an ad in the next issue of Cure Magazine and we will be hosting many new members.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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08-10-2006, 06:00 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Joe
I can help you police the board. You can check, but I think I can already do some tasks due to some authority you gave me for the chat room topic project. Let me know.
Becky
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08-10-2006, 06:48 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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I would be...
happy to help. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-10-2006, 07:42 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Joe,
I'll be glad to help if you like.
________
Reviews Extreme Q Vaporizer
Last edited by sassy; 08-22-2011 at 08:52 AM..
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08-10-2006, 08:59 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Joe, thanks for taking care of us so well. The last thing we all need here is a bunch of spam etc. - we all have quite enough on our plates, thank you!
If you still need help, I can help.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-10-2006, 10:32 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Just reported one ...
Joe - There is another one for a dating service that I just sent in as a "Bad Post."
Did not know how else to deal with it.
The Ad in CURE is a great idea.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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08-11-2006, 05:15 AM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Joe
If you need help, I'd be glad to help.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-11-2006, 06:23 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Joe and Christine,
This is really sad to read about. You really do not need this aggravation and the site is so vital to so many people it is scandalous and disgusting. Unfortunately it is a reflection of many parts of life that there are bad people or exploitative people who will intrude and harm a wonderful community. It's sick and sad and I am so offended that you have to deal with this as well as your own health and doing a selfless and helpful website.
I am not sure if I can help or not, but if you think there's a way I can, of course I would want to.
I must be terribly naive or you have moved so quickly but I have not noticed anything weird.
I do hope you can solve this problem without too much of a burden on you. The very worst thing that could happen is that you would give up this website because it became overwhelming.
Please know that I for one (and I know that everyone feels the same way) appreciate what you have created and admire you tremendously.
I am grateful beyond words that you exist,
sarah
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08-11-2006, 07:47 AM
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#9
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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THank you. I think it is a good thing that you are taking care of this early. At my job I get messages every day about Viagra, hot stock tips, Russian blondes, and products that will lenghten the body part I don't have. Our Information Tech at work says he can't stop all the Spam. Certainly I will send you info if I notice a dubious post. MJO
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08-11-2006, 08:01 AM
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#10
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Senior Member
Join Date: Sep 2005
Posts: 414
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Would be happy to help
With the eight-hour time difference, the spam wouldn't stay up for very long.
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08-11-2006, 01:53 PM
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#11
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Joe, I would be glad to help if needed. I really appreciate your work for us and hate to see this type of thing happening.
Marlys
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08-11-2006, 09:58 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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spam stinks!!! it is ruining my email at home too...good luck with all this...too bad to have such hassles on such a great site!
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