It's Getting Closer - Page 2

al from Canada · 07-31-2006, 09:16 PM

Joe, correct me if I am wrong however, a lot of the patients seeking Tykerb are looking for a "salvage" regime so isn't 2 weeks pushing the elvelope just a little?Al

Sherry in WV · 08-01-2006, 05:47 AM

Good LUck!!!! I go today to start the process.
sherry

IRENE FROM TAMPA · 08-01-2006, 04:15 PM

Yipeee for you Sherry and much good luck. Let me know when you get started.
I am still waiting but getting closer.

vickie h · 08-01-2006, 07:38 PM

Good luck, Sherry. I will be goping to The City Of Hope next week and will try to get Tykerb also. Please keep us all posted. Love, Vickie H

Sandy H · 08-02-2006, 04:53 AM

I am so happy for you Irene. I sure hope it comes through. I am frustrated thinking of those that need it and it is taking so long to get it. My doctor applied June 12th and the IRB is working on it. I need it but not as bad as some on this board. That is almost two months now and it doesn't look like it is coming in the next couple of weeks. It may not be until Sept. Now, I can see why some people don't live long enough to get these drugs. Sorry, if I sound negative but never realized how long these drugs really take to come through. The last I was told last week is that the IRB is sitting up protocal on how it is to be given. I have had a muga but no cat scan or signed any forms. Mine are skin mets and therefore do not show on any scans or markers. It is still very active disease. I know my oncologist is doing all he can and he will start screaming pretty soon if need be. For those that don't have an agressive doctor I feel bad. We have to be our own advocate. Wishing you well Irene and keep us updated as I know you have. hugs, Sandy