HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 07-28-2006, 08:52 AM   #1
sherri
Senior Member
 
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
Thanks MaryAnn,

This is very exciting. By the way how are you doing? We are waiting to celebrate your victory another time and this time for good.

Love and hug,
sherri is offline   Reply With Quote
Old 07-28-2006, 09:22 AM   #2
MJo
Senior Member
 
MJo's Avatar
 
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
Halleluja!. This is great news. Let's wipe out inflammatory breast cancer. MJO
MJo is offline   Reply With Quote
Old 07-28-2006, 09:53 AM   #3
Cathya
Senior Member
 
Cathya's Avatar
 
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Maryann;

That is a very interesting report. I wonder if those with IBC who are negative for Her2 could be helped with lapatinib? So glad to see you are doing well ....

Cathy
__________________
Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


Cathya is offline   Reply With Quote
Old 07-28-2006, 11:17 AM   #4
lexigirl
Senior Member
 
lexigirl's Avatar
 
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
Thanks for the info. It's great to know that there are new therapies coming out all of the time.

I hope you are doing well. Have a great weekend.

Love,
Lexi
lexigirl is offline   Reply With Quote
Old 07-28-2006, 01:19 PM   #5
Tom
Senior Member
 
Tom's Avatar
 
Join Date: Sep 2005
Posts: 290
Smile Great news!

I think somebody above has taken a liking to you Maryann. Things seem to be going your way for a change. This also bodes well for all of us I believe. Some day soon, BC will be a manageable chronic disease, rather than one that instills fear in all of us. Hope you are still doing well. Keep us informed.

Tom
Tom is offline   Reply With Quote
Old 07-29-2006, 07:20 AM   #6
Steph
Member
 
Join Date: Jul 2006
Location: Ft. Bragg N.C.
Posts: 14
This is good news...My Doctors won't say that mine was IBC and they won't say it's not. My current Doctor is putting me in the tykrb/herceptin trial(not sure which arm I'll get yet, tykerb alon or tykerb w/herceptin) but because there is a huge poosibility mine is IBC this is good news for me....for all of us!

Thankyou,
Steph
Steph is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 10:15 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter