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07-19-2006, 09:52 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 639
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2nd primary tumor? The latest update...
By way of a follow up; I had 4 scans last week (1 CAT and 3 octreoscans) and thank God, they came back clean and clear. However, because of ongoing symptoms (daily episodes of flushing), my onc wants me to have a second opinion with a carcinoid specialist at Dana Farber...so as far as I am concerned, I am in a holding pattern until we hear this man's recommendations. Thank you all for your earlier ideas, resources and suggestions...I will keep you posted...
Love Kim
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07-19-2006, 09:55 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Kim thanks for the update. Hope they find some benign reason for what you're experienceing.
Keep us posted on what you find out.
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07-20-2006, 02:30 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Kim
Encouraging, though the prayers will continue...as always. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-20-2006, 05:27 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I'm always thinking of you. I was going to personally write but I thought you might need your space right now. At least everything is going in the right direction.
Love, Becky
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07-20-2006, 01:16 PM
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#5
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Glad to hear ...
... that the scans did not show what was suspected. You may have any number of things going on, and a specialist is probably a good way to go for something that is out of the ordinary.
Hope this allows you to rest a little easier for now, and enjoy the summer with your family.
Take care of yourself, but I think you can be allowed ONE great chocolate dessert!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-20-2006, 03:38 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 639
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Chocolate?! why didn't I think of that?!?!
Dear Steph,
What a wonderful idea. angel girl...I will go for a big square of chocolate straight away! (Becky; how are the omega 3's and 6's in really dark chocolate?!)
Love Kim
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07-20-2006, 08:01 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Only RB knows for sure
but I think dark chocolate is only loaded with antioxidants and not much Omega 3.
Love and hugs
Becky
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07-20-2006, 08:10 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Glad to hear you "passed" 4 tests
and hope that you will get continued good news, and some answers, from the specialist. You've definitely earned the chocolate...really dark chocolate IS loaded with good polyphenols but aside from that is very healing to the soul!
Thanks for the update, and keep us posted if you can
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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