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THANKS everyone! I had not thought of contacting Genetech, I will do that. My nurse who has been an angel was very, very firm that she didn't seem like the 3 week dose was happening for me w/out a study to show the same or better results.
Like most of us, I REALLY want some distance from the hospital. It's not that everyone isn't great and wonderful - they are! I mentally would really, really like the break. However, it does not seem like that will be my situ . . .
I've pulled heaven and earth to keep my job during tx - which means ALOT of very early am appts and getting up very early to get to work to work my normal hours in addition to going to the docs all the time. I was off for 6 months, but went back to work very soon after surgery and my first post-surgery chemo. I worked through all the other post-surgery chemos and rads. So, it's a toll physically on me to manage all of these appts with work!
I think the solution is going to have to be Sat infusions as I requested immediately but was denied that. The nurse seemed more open to that now.
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