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07-12-2006, 07:46 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 31
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Dear Sandy,
I'm am so saddened to hear this news...what a shock for you and your family. My prayers go out to you and your family during this difficult time
Warmly,
Judiek
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07-12-2006, 07:59 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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article
There are many articles on the interenet about these infections. Since one of Sandy's intentions to make us aware of them, here is an article:
http://www.health.state.mn.us/divs/i...community.html
Best regards,
Barbara H. |
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07-12-2006, 05:29 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Sandy,
I'm so sad about your sister. My thoughts are with you and your family.
Big hug,
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07-12-2006, 06:05 PM
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#4
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Thanks Barbara for the article. I read it and found it helpful because my husband is trying to get an abscess healed on his leg and he spent 5 days in the hospital in May. Now, I am really concern and will be even more careful for myself. Thanks for all your well wishes. I am doing o.k. still in shock but time will heal and I will focus on the memories we shared. Sandy
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07-12-2006, 08:19 AM
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#5
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Senior Member
Join Date: Oct 2005
Location: Minneapolis, MN
Posts: 189
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Sandy,
So sorry. May the Lord's presence with His love, comfort and peace surround you and your family.
Cheryl
__________________
Cheryl
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07-12-2006, 11:24 AM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Sandy -
Having roomed with you twice in San Antonio, I know you a little better. You are a very practical person with that Northeast "no nonsense" type personality.
We all certainly appreciate your posting this tragedy as a warning, but we can't help but be shocked and feel sad for the sudden loss to the family. (I could barely put myself in your shoes as I have 2 very dear sisters, both younger and in good health.) {{{hugs}}}
Regarding the staph germs - this is why they pumped me full of $1,600 worth of antibiotics while I was in the hospital last month with my lumbar drain. One other thing. When the resident chief came to see me and saw I had an IV in my hand, he ordered the nurse to remove it and use my port.
Also why my GP was shaking his head and rolling his eyes when he heard about my recent stay in the hospital. He knows those risks. Fortunately, I gambled and won this time.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-12-2006, 12:12 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Sandy,
I am so very sorry to hear about your sister's sudden death. My heart goes out to you.
Sarah
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07-12-2006, 12:27 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Sandy;
I am so sorry for your loss. You are so correct in reminding us about the dangers of hospitals but what a horrible way to be reminded. My thoughts are prayers are with you and your family.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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07-12-2006, 06:32 PM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 64
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Sandy: My thoughts and prayers are with you and your family. BERTA
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07-12-2006, 06:41 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Wow Sandy, so sorry to hear the news of your sister. That's certainly an unexpected thing to happen. Thanks for the information, it may help somebody else out.
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07-12-2006, 06:43 PM
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#11
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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Sandy, I am so very sorry to hear about your sisters passing! A terrible shock to you all!
You and you family are in my prayers..
Maggie
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07-13-2006, 03:33 AM
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#12
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Dear Sandy I am very sorry for the loss of your sister. So many times we go through life thinking we have so much time left. This proves how fragile life is. My deepest sympathy to you and your family. Lu Ann.
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07-13-2006, 06:07 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Dear Sandy-
I am so sorry for your loss. You and your family are in our thoughts and prayers - be sure to take care of yourself during this difficult time.
Cordially,
Shell
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07-14-2006, 07:29 PM
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#14
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Member
Join Date: May 2006
Posts: 8
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Lyn's sister Dawn
Dear Sandy, I am so sorry for your loss, when you know a family member is very sick at least we can prepare ourselves a little bit but for it to happen so suddenly you don't realise how precious our time is. I know you will miss your sister as we do Lyn. Regards Dawn
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07-15-2006, 02:43 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Sandy, so sorry to hear about your sister. Thank you for making me aware of the severity of staph...I had an infection as a kid and still have a huge scar as a result. Nasty stuff
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