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Dawn;
I am so happy for you that your onc is positive and encouraging!!! That means he/she will fight for you and that is exactly what you need...a doctor who values you as a person and who will try anything and everything for your survival. You never really know actually....perhaps you have beaten this disease and it will never return. You really don't know. I had clear margins...one was only 1 mm but clear......negative nodes as well....but they still found a 1 cm tumor in my supraclavicular node....so metatastic bc. The point I am making is that you really never know......so keep up the fight....complete all your treatments.....use herceptin.....keep aggressively following your disease and up to date on potential treatments and continue to develope a good relationship with your onc. You will be fine.
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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