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07-11-2006, 03:16 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 31
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Brain MRI was negative...but
I'm not out of the woods yet. Thank you all so very much for your love and prayers for a negative outcome...they worked! I was shocked that it was negative...but SO RELIEVED!! I have to go back and see the neuro doctor as they want to rule out eye mets. I will get an appt tomorrow. Several of the doctors have mentioned a spinal tap...of course that would be for mets in the spinal fluid or leptomenigeal mets...I can't even go there. My onc finally got my scans with contrast from Boston ER today. He will have them read tomorrow and I will know if I'm still stable in the liver. We will continue to press forward with this pupil issue and we pray that it's not cancer related! Hopefully, I will be able to remain on gemzar as it's been so easy for me.
I didn't tell any of my family members about my being admitted to the hospital or the MRI. I'm glad...I would have worried them once again. I know that I'm a huge worrier...but it's scary when someone tells you something is pressing on your III cranial nerve. MRI didn't even show inflamation to this nerve. I'm glad that test is behind me.
Thanks again
Love and hugs to all,
Judiek
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07-11-2006, 04:44 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Judiek-I'm so glad you got some good news, and at least a small sense of relief. I do hate that there is usually a "but...". I hope you continue to get good results from your CT scan and can get some resolution of what is going on with your eye (and that is doesn't involve the "C" word)
It's so hard to know when to tell the family, not wanting to cause them undue worry but at the same time, bearing it all yourself is hard, too. Who wouldn't be worried!
You are such a fighter - keep it up, and I'll keep up the prayers for continued good results.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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07-11-2006, 04:51 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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That is great news! Hopefully there is not any bad news from the neur. and your eye problem will resolve on its own.
Love,
Lexi
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07-11-2006, 04:51 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Judie,
I was so pleased to hear that your MRI came back negative. I am hoping that you will continue to get positive news. I wonder if this eye issue could be a result of some sort of nerve inflamation from the chemo or even the virus you had.
Keep us informed.
Best wishes,
Barbara H.
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07-11-2006, 04:56 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Judiek;
I am so happy to hear of your results. I know it is such a relief!!! Celebrate!! It still seems to me that you have an aggressive cancer and I would try to get some genetic testing at this point. You are comfortable here with us....lol...that is to say we her2+'s and I would trust your instinct....we are alike in some way....so get some testing. There are marvelous drugs available if you know what direction to go in. Keep posting so we will continue to know that you are fine....as I know you will be.
Best regards,
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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07-11-2006, 06:30 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Judie...
Prayers will continue. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-11-2006, 07:28 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Congratulations on your good news!! I am still thinking that there is some kind of inflammation from chemo, as I had mentioned before. Just out of curiosity, when they did your eye exam before, didn't they check for mets at the time?
Karen
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07-12-2006, 06:49 AM
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#8
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Congratulations on your good news and may you also get good news regarding your eye. My thoughts and prayers are with you.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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