Experience with Tykerb

[mkrny]

Great news to hear.

My wife has leptomenengeal disease (cancer in spinal fluid affecting the surface of her brain). We are about to start treatment and would like to get Tykerb. We're in NY on Long Island. I got leads from GSK and her onc is pursuing trial at MSK in NYC for us w/ Dr Monica Fornier. Next closest sites are Boston and Philly area.
No ESP sites here yet that I know of. Anyone have different news for Long Island area?
Thanks,
Maryann & Ken

[nouprjz]

We live 35 miles northwest of Pittsburgh. We started the clinical trial at Georgretown University Hospital in DC then transferred to Hillman Cancer Center in Pittsburgh.

[mkrny]

Both a little farther than we'd like but just in case we hit roadblock locally, can you provide contact info for the folks working with Tykerb at Georgetown Univ Hospital in DC?

Thanks, Maryann & Ken

[cathy34]

I too am located on Long Island. I go to Dr. Lora Weisleberg at the Monter Cancer Center (used to be at North Shore University Hosp in Manhasset). I don't think they have any ESP for Tykerb at there yet.
--Cathy