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07-02-2006, 10:14 AM
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#1
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Joe And Christine
Congrats To You Both And So Deservingly So.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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07-02-2006, 11:26 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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well deserved...
You deserve not only this recognition, but much, much more. Thanks for all you do.
By the way, my onc said he stopped by the HER2-Support booth at Atlanta. Did you happen to catch Dr. Kochenderfer from Wake Forrest?
Sassy
________
The Cliff Condominiums Cosy Beach
Last edited by sassy; 08-22-2011 at 08:49 AM..
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07-02-2006, 12:45 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Congratuations!! Well deserved and keep up the wonderful work. You have certainly provided a forum of information invaluable to us.
Cathy
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07-02-2006, 01:31 PM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 285
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Much congratulations! I know this is not why you started this site, but if anyone deserves it, it's you two.
Love and light,
Lisa
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07-02-2006, 04:56 PM
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#5
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Sassy,
I don't recall your onc, but we had a lo9ng discussion with Dr. Edward Shaw of Wake Forrest who is doing cutting edge research in restoring congnitive function after WBR.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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07-02-2006, 05:22 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Congratulations to both of you. It is well deserved.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-02-2006, 07:47 PM
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#7
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Member
Join Date: May 2006
Posts: 8
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From Lyn's Family
Joe And Christine, I would like to congratulate you two, if Lyn was here she would of done this and would of been so proud, Thank You again for all your help. Lyn's Family
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07-03-2006, 07:41 AM
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#8
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Congratulations
Very well deserved
RB
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07-03-2006, 08:34 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Joe and Christine-
What a great tribute and deserving acknowledgement for all you have done for us. Education is so powerful, and I am so grateful to hear of the cutting-edge technologies that I read about on this site.
Many thanks...
Shell
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07-03-2006, 11:15 AM
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#10
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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This Award is tip of the iceberg
The thousands of hours Christine and Joe have spent working on this forum, networking with doctors and drug companies, consoling and advising members of this board can only be imagined!
And the truly awesome thing about them is that there is NO EGO involved on their part - this all comes from the goodness of their hearts.
We do not know the amount of frustration and other behind the scenes glitches they have to deal with. The MERE FACT that they have kept it all going speaks volumes.
May God bless them in every way.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-03-2006, 11:46 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Dear Joe and Chritine,
You certainly deserve it! what a wonderful wonderful site with great members.
Have a blast!
sarah
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