Hi Julie,
I was in the Phase I/II CTL peptide-based vaccine study which required HLA A2 positivity. UW has several different vaccines they're testing, and I'm not familiar with the differences but a good starting place for information is to contact the study coordinator for each trial, who will be able to give you some information and possibly send a copy of the Consent Form (these contain all the details about the particular vaccine and as well, the cautions about being a participant)...BUT, only you will be able to decide if it's something you want to pursue. When I was thinking about the study I got into, I asked my oncologist to look into it for me; even with all the info available from this site and from the UW site I wanted to make sure he was comfortable with me being in the trial. He talked with Dr. Disis, and had all his questions answered so felt good about my participation, and that's what tipped the scales for me. You should ask one of your doctors who you trust to make a few calls for you. I think you're wise to think it over carefully, and in the final analysis you'll have to make the call. This IS a good time to get into a trial, being NED, which was when I entered, and even though I had a subsequent recurrence, my onc and I feel the vaccine has helped keep the spread in check. Good luck with your decision.
<3 Lolly
Last edited by Lolly; 06-30-2006 at 07:33 AM..
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