HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 06-25-2006, 05:29 PM   #1
Unregistered
Guest
 
Posts: n/a
I lost weight during chemo (about 20 pounds) although I was never nauseated - things just didn't taste that good. Now, however, I have a terrible sweet tooth and have gained about 10 of those uneeded/unwanted pounds back.
  Reply With Quote
Old 06-25-2006, 05:31 PM   #2
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Smile Oops

Sorry, I forgot to log in!!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 06-25-2006, 05:55 PM   #3
Berta
Senior Member
 
Join Date: Sep 2005
Posts: 64
I gained 20 lbs during chemo. Lost it between chemo and herceptin and have gained it back on herceptin. I don't know how representative I am because I have always been heavy and had just lost 40 lbs prior to diagnosis. BERTA
Berta is offline   Reply With Quote
Old 06-25-2006, 06:27 PM   #4
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Wink Thin or overweight at dx?

I think part of the key to this question is whether we were fairly stable and in a good range when we were diagnosed.
never was over 128 in my life prior to dx. The pounds crept on during treatment mainly because of decadron I think. My mets came very soon after initial treatment and this did not help with the weight as I had to have the same premed, but a lower dose.

Age is the other big factor and how our metabolism is doing with the hormone changes.
I now weight in the 140- 143 range - and fight hard to keep that number.

Fatigue and lowered activity level is the other main factor off the top of my head. Just not enough "get up and go" in the tank. Flab happens then.

The only time I lost weight was when I was on higher dose of Decadron for the brain mets - high enough to buzz me up and interrupt my sleep. That is because the drug is muscle wasting in that dose.
I have taken Herceptin now for 4 years and this does not seem to affect my weight.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 06-25-2006, 06:49 PM   #5
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
Started out in normal range but heavier than I had been when younger. Diagnosis made me lose my appetite and 10#. During AC I weighed myself often and would eat high calorie foods whenever my weight went down. Gained 8# during taxol and premeds. Lost a couple during rads. My weight has stabilized during the Herceptin and tamoxifen stage. I'm hoping that I don't balloon when I switch to an AI.
Bev is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 04:17 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter