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06-20-2006, 10:34 AM
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#1
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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it never rains it pours
Just a note that I need to take time from the group as (Linda's) daughter who is 22 and lives here with her brother and I, has been admitted to ICU with blood clots in her lungs. This happened after doctors dismissing her complaints for weeks as stress. On Sunday she was so sick she ended up in ICU. Many tests yesterday and today. Hopefully, we will know a lot more but we do know that she has "multiple clots". She will be cleared from ICU when the crisis has passed and will maybe spend more than a week in the medical wing. She has been sliding into a depressive state lately and all of us have been working very hard to pull her out. She was not only a daughter but also Linda's best friend and extremely close tp her mom. I have attempted to get her to coucilling many times over but no buy-in.... and what scares the hell out of me is I hope this isn't some kind of death wish.
Linda may have entered this world as a warm summer breeze but she sure left like a hurricane. The feelings of loss in her wake have been overwhelming but ....... I don't think any of us really have the luxury of giving up so.... there's business I have to take care of and will check in later.
Keep kickin' ass ladies because you owe it to yourselves and your families.
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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06-20-2006, 10:38 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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As always...
Our prayers will continue for you and your family. I hope she gets better soon. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-20-2006, 10:48 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Take care of your family Al! God bless. Hope to hear that all is getting better soon. - kim
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06-20-2006, 11:41 AM
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#4
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Al, I'm thankful you let us know what's going on so we don't worry while you're gone. Take good care, and I'll keep your family in my thoughts and prayers.
<3 Lolly
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06-20-2006, 12:32 PM
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#5
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Time to take care of your family, they come first and foremost. We will hold up the fort in your absence and keep kicking butts as you so well put. No one is giving up here ever!
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-20-2006, 01:07 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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Al, so sorry to here about your daughter (step) I sure hope all goes well!!
She has an awesome advocate on her side!!
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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06-20-2006, 01:18 PM
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#7
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Senior Member
Join Date: Mar 2006
Location: Minnesota
Posts: 32
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Al,
Please let Linda's daughter know that the members of the HER2 support group are pulling for her. I am sorry that this has happened.
__________________
Ann
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06-20-2006, 01:30 PM
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#8
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Senior Member
Join Date: Mar 2006
Posts: 87
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It's truly not fair. I can not begin to imagine the rough go that Linda's daughter and your entire family is having.
We wish you all the best,
Susan
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06-20-2006, 01:44 PM
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#9
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Member
Join Date: Jun 2006
Location: Norfolk, VA
Posts: 6
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AL I'm very sorry to here about your daughter, my prayers go out to your daughter, you, the rest of your family. Be strong for her!
Hugs
Annette
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06-20-2006, 02:20 PM
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#10
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Senior Member
Join Date: Mar 2006
Location: Minnesota
Posts: 80
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Oh Al I am so sorry. Best wishes and take care. Keep us posted.
Bobbi
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06-20-2006, 02:38 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Al,
She should not be going through this at 22. My heart goes out to her and to you . Perhaps with this happening they will take the situation seriously and get her some real help. A former student of mine just lost his father, and I am trying to help him. This is not easy and depression does affect the immune system in serioius ways. Try to insist that the hospital help out with therapy while she is there.
Good luck and best wishes,
Barbara H.
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06-20-2006, 02:52 PM
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#12
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Dear Al,
I am so sorry to hear about your step daughter. I hope they find the cause of her illness very soon. I suffered from horrible depression when my dad died and it took awhile before I felt better. I ended up joining a bereavement support group through the local hospice. It really helped me a lot. It is a process, as you know.
You and your family are in my thoughts and prayers.
Hugs,
Karen
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06-20-2006, 03:21 PM
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#13
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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I know I grind on about fat intake but I would recommend reading Smart Fats by M Scmidt. It is available on the internet.
Cracking the Metabolic Code James B LaValle is thought provoking.
The are quite a lot of trials on the implications of fats in depression.
Omega three DHA EPA have roles to play in the vascualar system, clotting, arterial degredation etc.
There are lots of trials on
http://www.ncbi.nih.gov/
Here is the result of a search on that site for "clotting dha epa".
http://www.ncbi.nlm.nih.gov/entrez/q...arch&DB=pubmed
And one for "depression dha epa"
http://www.ncbi.nlm.nih.gov/entrez/q...arch&DB=pubmed
It is also important to give thought to balancing the omega threes and sixes - please see the posts on this site. This for most people requires examination of diet, looking at the content of processed foods, intake of greens, coloured fruit and veg, variety etc. The health of the digestive track is also key, and is a factor in fat metabolism.
If this is all well and truly covered please forgive the post.
I hope the treatment goes well.
Please do discuss any dietary changes with your doctors.
RB |
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06-20-2006, 03:25 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Central Valley, CA
Posts: 73
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So sorry to hear what your family is going through again. My thoughts and prayers are with you.
Take care,
Helen
__________________
- Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
- Carbo/Taxotere/ Herceptin combo for 6 months
- Herceptin/ Navelbine
- Recurrence on the same liver spot in 7/07
- Liver resection 9/07
- Tykerb/xeloda 10/22/07
- NED since 9/07 and continued Tykerb/xeloda
- PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
- PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
- Onc considering Taxol/avastin
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06-20-2006, 04:04 PM
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#15
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Al,
Just know you and your family are still in my prayers.
Mary
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06-20-2006, 05:12 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Al;
I am so sorry to hear about your daughter. Please remember that depression alone will not give her clots in her lungs. This is a medical problem and she must be aware of that as well. What a horrible time for your family. God bless
Cathy
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06-20-2006, 05:16 PM
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#17
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Senior Member
Join Date: Sep 2005
Posts: 161
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Sending good thoughts. She is lucky to have you....
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06-20-2006, 05:36 PM
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#18
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Senior Member
Join Date: Dec 2005
Posts: 274
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Hi Al,
My thoughts and prayers are with you and your family. God has given you strength and will continue to do so.
Sincerely,
Liz J.
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06-20-2006, 06:03 PM
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#19
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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TOO much!
How much can one family take??
Spend all the time you need with your daughter and ride those docs as we know YOU can.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-20-2006, 06:51 PM
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#20
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Senior Member
Join Date: Sep 2005
Posts: 589
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Al,
Sorry to hear that your (step) daughter is having such a hard time managing with such a terrible loss. My thougthts and prayers are with all of you.
Eric
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