HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 06-14-2006, 05:46 PM   #1
Kim in DC
Senior Member
 
Join Date: Nov 2004
Posts: 190
Liver met questions

I tried to go through previous threads but I have specific questions. I have been having pains on my right side, front and back, on and off. They are not sharp, more like a tightness. Also I am having some gas. Did any of you with liver mets experience this? The pain moves all around.

I was diagnosed stage 3/B with neoadjuvant tax/herceptin, adjuvant herceptin and navelbine and now I am currently on Herceptin alone. If these turn out to be mets, What chemos should I be on? Should I get the serum test?

In the mean time, what supplements can I take to help the herceptin with the liver?

Kim in DC
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
Kim in DC is offline   Reply With Quote
Old 06-14-2006, 06:38 PM   #2
karenann
Senior Member
 
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
Kim,

I would look back to see some of Gina's previous posts. She had liver mets 8 or 9 years ago and has been ned with just Herceptin every 6 weeks and supplements.

Karen
karenann is offline   Reply With Quote
Old 06-14-2006, 07:33 PM   #3
Sherryg683
Senior Member
 
Sherryg683's Avatar
 
Join Date: Feb 2006
Posts: 1,014
I see you have been on taxotere. I have the same sort of pains in my liver area going around to the rib area. I have had several PET scans and while I do have a couple of small hyperlesions on my liver they have never tested postive for Cancer. I sometimes get the pains on my left side also. My Oncologist said he thinks its leftover from the chemo, it messes up your stomach. I do notice mine gets worse after I eat. I would have it checked out although most that have liver mets, have no symptoms..sherryg683
Sherryg683 is offline   Reply With Quote
Old 06-14-2006, 09:12 PM   #4
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Kim,
I was dx with extensive liver mets in 2004 and had no "right side" pain, just a little indigestion. Liver enzymes were not much elevated either.
The pains you describe may be nothing - but do get it checked out. Request an ultrasound (minimum) or preferably CT scan to rule out liver mets.
Its too bad - in addition to everything else we go through, we can't just have a sinus cold or backache without fearing the worst! Here's hoping this is one of those false alarm moments!
Please keep us posted!
Chris
chrisy is offline   Reply With Quote
Old 06-14-2006, 09:30 PM   #5
Lisa
Senior Member
 
Lisa's Avatar
 
Join Date: Sep 2005
Posts: 285
My liver mets first showed symptoms under my right shoulder blade in the back. For months I thought this was a pulled muscle. Then after my liver mets were diagnosed, I found out that this is a sign of cancer in the liver. Since then, with continuing liver mets, I occasionally have pain in the liver itself, just below and to the side of the right front rib cage.

Having said that, your pains could be anything. If they concern you, ask for a scan. Much better safe than sorry.

Love and light,

Lisa
Lisa is offline   Reply With Quote
Old 06-15-2006, 07:39 AM   #6
Barbara
Senior Member
 
Join Date: Oct 2005
Location: Payson, Arizona
Posts: 96
Liver Mets question

Kim:

I would request a CT or an MRI and not an ultrasound. Ultrasound tends to miss small lesions. MRI is the most sensitive but you can't biopsy from an MRI and that is why CT is usually used.

Remember that Chemo will also raise havoc on your gallbladder and sometimes the pain is related to that organ and not liver mets.

It is always good to find out even if it is chemo side affects or the gallbladder as peace of mind is invaluable.

Barbara
Barbara is offline   Reply With Quote
Old 06-15-2006, 11:53 AM   #7
Helen
Senior Member
 
Join Date: Sep 2005
Location: Central Valley, CA
Posts: 73
Hi Kim,
I have experienced what you have described on and off too when I was on chemo with Taxotere and even after I had it. I still have active liver mets (stable). I remember a previous thread on this and I thought it was a Herceptin side effect. When was the last time you had a CT/PET scan? Have it checked for your peace of mind.

Helen
__________________
  • Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
  • Carbo/Taxotere/ Herceptin combo for 6 months
  • Herceptin/ Navelbine
  • Recurrence on the same liver spot in 7/07
  • Liver resection 9/07
  • Tykerb/xeloda 10/22/07
  • NED since 9/07 and continued Tykerb/xeloda
  • PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
  • PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
  • Onc considering Taxol/avastin
Helen is offline   Reply With Quote
Old 06-16-2006, 04:46 PM   #8
Kim in DC
Senior Member
 
Join Date: Nov 2004
Posts: 190
Thank you

Thanks for all the help. I'm hoping it's my gallbladder. I pains in the abdomen that feel like gas and pains in the back between the shoulder blades.I have a ct scan scheduled.
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
Kim in DC is offline   Reply With Quote
Old 06-16-2006, 11:30 PM   #9
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
I have been on the herceptin, taxotere & carbpotin since Feb. 06. I have been told its the taxotere causing the rib pain I am having. (I sure hope so...I always worry about mets too.)

But since I first started the taxotere, carb, I have had pain on the right side of my ribs...and the left. But the right always being much worse. I recently had a pet/ct scan and nothing showed up in either place...but the way it hurts always worries me.

But hopefully...don't worry to much...its probably just a side affect of the Taxotere. My pain in the ribs comes and goes too. I have been bugging my oncologist since day one as to why it always seems to hurt where my liver is? She doesn't know. (But when you have bc...everything is always a worry...its hard not to let each little pain drive you nuts.) I personally hate it as I am sure everyone else does too.

Good luck to you...

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Old 06-17-2006, 10:02 AM   #10
madubois63
Senior Member
 
madubois63's Avatar
 
Join Date: Feb 2005
Location: LI, NY
Posts: 660
Like Lisa, first I had the pain in the right shoulder blade - actually, it was a deep itch that I just couldn't scratch hard enough. Then I had the pain in the actual liver on the right lower abdomen side. Talk to your onc and get a scan just to put your mind at ease. The canceritis can be debilitating. Also talk to your onc about supplements. I take milk thistle for the liver. Good luck.


..·´¨¨)) -:¦:-
¸.·´ .·´¨¨))
-:¦:-
((¸¸.·´ ¸.·´
-:¦:- -:¦:-
-:¦:-
((¸¸.Maryann -:¦:-´´
madubois63 is offline   Reply With Quote
Old 03-11-2007, 03:54 PM   #11
kat in the delta
Senior Member
 
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
Thumbs down kat in the delta

COULD ANY OF YOU WITH LIVER MET. FEEL A MOVEMENT (could be fluid) OR RATTLE IN YOUR RIB CAGE ON THE RT.SIDE WHEN YOU TOOK A DEEP BREATH IN ?? THAT'S HOW MINE FEELS---my sister even put the palm of her hand over my rib cage and felt it. IT was MORE PAINFUL when , for instance , I sneeze..(.??? ) I have not had a cold or cough tho'. What scan, if any, would be the best..I had a bone scan, and my rib cage bones were fine. kat in the delta

Last edited by kat in the delta; 03-11-2007 at 03:56 PM.. Reason: left out
kat in the delta is offline   Reply With Quote
Old 03-11-2007, 05:00 PM   #12
Esther
Senior Member
 
Esther's Avatar
 
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
if you are worried about liver mets, a ct scan should be able to tell if there any lesions to worry about in your liver.

Other than that, liver enzymes can also add to the picture of how your liver is functioning.
Esther is offline   Reply With Quote
Old 03-17-2007, 12:09 AM   #13
kat in the delta
Senior Member
 
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
Thumbs down kat in the delta

Esther or Anyone in HERE,,,,
I had a bone scan and it was OK.,so it's not my bones on the right side....A CT,as you mentioned, is a CAT scan, right? It would show tissue?? I get the CAT and the MRI and the PET Scans all confused--which shows tissue, or what?? and How would liver enzymes be shown as working properly? kat in the delta

PS. I have taken 4 doses of Zometa--started 2 at last part of treatment and have taken 2 (3 months apart) because of Osteopenia. I just heard a teleconference and I asked the Onc and he said I should only have to have Zometa 1 x per year !! Have I been overdosed?? I have told my Onc that the Zometa cause my bones to be in PAIN--he just thinks its nothing and to take a tylenol..I have bad kidneys and cannot take aspirin.. kat
kat in the delta is offline   Reply With Quote
Old 03-17-2007, 12:23 AM   #14
kat in the delta
Senior Member
 
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
Thumbs down kat in the delta

Hi Chrisy,
HOW and What are you doing for your Liver MEts?? What Chemos or Rad do you get.??..I had a masc.in April of '05--hard to believe it's been that long ago....and I haven't stopped yet ! I finished all major chemos and Rad.and then went thru a whole year of Herceptin. The major stuff was over around the last of Aug.'06. but, I am now getting Zometa-IV every 3 months and tamoxifen every day..... .........My side still hurts. I think I will go back to my gen MD again to get a MRI, you think?? or a CAT scan, or just start with a simple Ultra sound???? ...I called my ONC..but he never returned my call. I have not talked to my surgeon, tho. She is about 2 hrs away, but is very good, and knows so much....When I found out I had B.C.,I ask my GYN.(75yrs)"Who would you send YOUR wife to?" He gave me this surgeon's name...........Any advice for peace of mind ??------------------------------------------- kat in the delta

Last edited by kat in the delta; 03-17-2007 at 12:29 AM.. Reason: left out
kat in the delta is offline   Reply With Quote
Old 03-17-2007, 06:24 PM   #15
Carol Carlson
Senior Member
 
Join Date: Sep 2005
Posts: 77
Kim,
I recently went to my onc. for a routine visit... told her that I was having some intermittant pain in the right upper quadrant ...( I have GERD --reflux) and take protonix for that so she ordered an ultrasound for possible gallbladder invovement. It was normal ..but as she was examining me I asked about my liver and she said it seemed fine plus my liver enzymes were within normal limits.
I think it's normal to think that anything that appears different, you just suspect that it has something to do with our diagnosis. It is good to have things " ruled out" as a possible cause of recurrance.
More than likely you are fine and maybe need some follow-up just for peace of mind.
I'l be glad to give you the particulars of my diagnosis if you'd like.
Be well and take a deep breath....
Carol
Carol Carlson is offline   Reply With Quote
Old 03-17-2007, 09:36 PM   #16
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
It could be anything... but my OB/Gyn routinely orders TransV/ Ultrasounds for BC patients to rule out disorders of those parts.
Disorders of the repro tract can cause similiar symptoms.

Keep asking. You need them to rule out everything. BB
Bev is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 01:18 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter