Pattz's Question/how long to get Tykerb?

[pattyz]

Oh (Dearest) Al......

I seem to keep putting my foot in my mouth. Sit inactive at keyboard with fingers just hovering now...

Please keep in mind my brain is a malfunctioning organ most days. That is my only 'rationalization'.

From my first dx of brain mets, nearly four yrs ago, THAT has become my own area of 'expertise' coming from my personal history of bc. I responded well to Navelbine/Herceptin simultaniously for other mets. No further tx since then. Brain mets only. I do understand that my circumstanes are 'unique' to me. But, it's ALL I have to offer. My own experience.

Warmest regards,
pattyz

[cathy34]

Hi to all,
I spoke with my onc on Friday about the Tykerb drug. She is very excited about it and what it is doing. Right now, I'm in a wait and see phase. I am on Navelbine w/Herceptin combo that as of my last chest CT scan in April it was working. I have to set up an appt for my next Chest/Ab/pelv CT before I see the onc. again on July 7th. My onc. said she won't stop my treatment that is working to try something that we aren't sure if it will work for me. I'm all for that approach right now. I am just so happy that she finally find a mixture that is finally working for me. I pray that it continues to work in my favor. With my next CT we are looking for additional shrinkage or no change with no new growth.
Only positive thoughts +++++++++++++++
Cathy 34

[al from Canada]

Sorry Patty (and girls), I did forget one critical piece of information. After Linda was dx with brain mets and tx with wbr (the Allos trial), we immediately put her on Tarceva (+ herceptin), with is a very powerful HER1 (EGFR) inhibitor. We know she was strongly HER1+++ as one of the side effects of most EGFRI's is a rash, this I believe includes Tykerb. Linda looked like she had the chicenpox. She had 5 weeks of it but it didn't help her. I still wonder about what else was at play here.
Al