I have been on Herceptin since 2003, weekly for the first year and every three weeks since, due to a recurrence. My local doctor feels I should stop the Herceptin since I am NED but I am unsure. I saw my oncologist in Boston yesterday and she is inclined to keep me on the Herceptin but is looking into it further. She did say there is no evidence to support any side effects or organ damage, other than the heart, so do have your MUGA scans.
There are women out there who have been on Herceptin for 9 years without incident. Those odds sound good to me!!! Good luck with your decision as I fully understand where you are coming from.
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