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Old 05-22-2006, 12:17 PM   #1
rinaina
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just had to write to express how nice it was to hear what both Al and Tom had to say and you better believe that I will be having my wonderful hubby read their posts. he has been very supportive going to every appointment with me so far but he isn't very expressive emotionally and sometimes us women just need to hear things. I can so relate to what was said by some about how at times the tv seems more important or playing golf is more of a priority, etc, but that doesn't mean they don't care. Some just have trouble putting it into words or wanting to because it makes them too sad to think so much about it. In my case, I know he cares very much even if he doesn't like to talk about it. It is too difficult for him to think about it and talk about it, but I know I can count on him. Al and Tom you are both two very special men.
Now about this weight gain issue. May I please complain about how bummed I am that I will be gaining weight from treatment! Darn right angry over it too. I work so hard at staying in shape and still am not at my ideal weight by no means and now I am going to gain even more weight! Geeeezzzz, losing hair is nothing, we all get it back but the weight gain....now that is a serious problems and it sounds like it doesn't come off that easily. Any feedback from other members? Thank you..
Rina
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 05-22-2006, 03:31 PM   #2
Sheila
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Rina
I have gained 20# and wish I new the magic to take it off...I exercise, eat healthy, I dont know if its the medicine or more age and hormonal related...I am 54. I don't like it either, and have to hear about it from my spouse, but I feel its a small price to pay for my life... so goodbye 6's and hello 10's....jsut need to shop more I guess, and that would be the good side.
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 05-22-2006, 05:01 PM   #3
rinaina
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just wish i knew for sure why you gain the weight.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 05-22-2006, 06:21 PM   #4
Sonja
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Sheila,I hear you with the 20# weight gain. I was diagnosed in 1999 with ulcerative colitis and everytime it acts up on me, I have to take cortizone to stabilize it. I take the cortisone and gain 5#! So between my quitting smoking in 1995 and my colitis I have gained a total of 40+#! And now the onc says to expect to gain 'abit' more weight?! I'm top heavy - take a size 16 on top and 14 on the bottom.....!
Oh well, I will do anything to get healthy! Tomorrow is my big day so I will be able to give you some more news about the weight gain in the future!
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