***What was your date of dx, stage, treatment and current status...???***

[CherylS]

Diagnosed 2/2005, age 44
Lumpectomy 3/4/05
0/6 nodes
re-excision 3/17/05 for clearer margins
Stage 1, 1.7 cm, ER+ 75%, PR 4%, HER2 5.6 on FISH, grade 3
4 AC, 12 weekly Taxol w/Herceptin
Herceptin continued every 3 weeks for a year
bi-lateral masectomy 9/05, reconstruction continuing
oophrectomy at same time
Arimidex for 5 years

[SherriT]

Diagnosed 12/02/05 - given the news two days before my 37th birthday.

Locally advanced breast cancer / Inflammatory breast cancer (IBC)
Stage IIIb
ER/PR-
Her2+ (3+)
1.5 cm in size, right breast, inner quadrant
Nottingham grade 3
two underarm nodes abnormal looking but never tested
one abnormal supraclavicular node found but never tested
T2 N3c Mx G3 (poorly differentiated ductal carcinoma)

- Unsure whether nodes were actually involved or whether they were just "reacting" to the cancer as chemo was started right away.
- 12/22/05 - started FEC (fluoracil, epirubicin & cyclophosphamide) -four treatments every 3 weeks.
- 03/23/06 - started TCH (docetaxel, carboplatin and herceptin) -four treatments every 3 weeks.
- 04/01/06 - hospitalized for one week - low blood counts led to very seriously inflamed bowel/colon. Spent four days in critical care followed three days in isolated hospital room. NOT fun!! I am still recovering.
- treatment plan consists of right side mastectomy (unsure whether I should remove both?) followed by radiation.

Sign me,
Terrified that I've been given a death sentence and yet positive that I'll kick the crap out of this disease,
Sherri

[DeborahNC]

Diagnosed 9/04
Stage 0
DCIS right breast, comedo type ER+
Lumpectomy
33 rads
Refused Tamoxifen

Diagnosed 9/05
Stage 1
Bilateral mastectomy (chose prophy for left breast although it was healthy)
SNL-negative in 3 nodes taken
IDC .7cm, DCIS (comedo) 3 cm
Her+++ Er+(weakly)/PR-
Completed 9 of 12 Taxol/Herceptin infusions
Will stay on Herceptin every 3 weeks through October
Will begin AI after Herceptin treatment finished
PET and brain MRI clear 12/05

[Audrey]

Dx July 2001, age 36
15 cm tumor! (did NOT show up on mammogram?!) presented as bloody nipple discharge) 11 + lymph nodes
ER/PR-, Her2+
Stage III
Treated with mastectomy, A/C, weekly Taxol, followed by one year of Herceptin
Radiation
Prophylactic mastectomy on remaining breast
Reconstruction
Last date of herceptin--March 2003
NED!!! Celebrating 5 years of survival this summer
Made it to 40 and counting!

[emmasmom]

Found lump in shower; Went for mammogram and ultrasound and they did a biopsy on my left breast and a lymph node on the spot; Diagnosed in 11/06 at age 36; Tumor was 1.2 cm, 7 of 12 lymph nodes; Grade III; Stage IIIA; ER - /HER2 +++; Finished 4 Rounds of AC; Finish 12 weekly Taxol/Herceptin on Thursday (YEA!); Meet with Radiologist next Tuesday; and will be on Herceptin for the rest of the year.

Love, Lisa

[IRENE FROM TAMPA]

10 YEAR BREAST CANCER SURVIVOR
-- --------------------------------

Jan. 1996 - diag. with Infiltrating ductal carcinoma to left breast. Had
modified ratical mastetomy with immediate tram flap
reconstruction. Was on Adriamycin/Cytoxin/5FU

Jan. 1999 - Recurrence to auxilla on left side and also met. to liver.
Treated with 2 rounds of Taxol and had a stem cell replacement
with very high dose chemo. In hospital 30 days during
transplant. Found out at this time that I was Her2 possitive
and started on Herceptin in Dec. 1999

Jan/Feb 2001 - recurrence again in liver - 1 tumor.
Treated with Navelbine/Herceptin - 8 months
Gemzar/Herceptin - 8 months
Xeloda/Herceptin - 8 months
tumor never completely destroyed.

Sept. 2003 - Had Radio Frequency Abalation to liver for tumor.
Tumor returned around 8 months later

July 2004 - Decided to try resection of liver. Surgeon removed
half of my liver and along with it the tumor.
Liver has grown back nicely and so far no tumors in
the liver.

Feb. 2005 - Recurrence to lymph node behind head of pancreas
Treated with Abraxane for 8 months when rescanned
and showed another small tumor next to the first lymph
node. Was taken off of the Herceptin when started
Abraxane.

April 2006 - Just took my first treatment of TAXOL/CARBOPLATIN/HERCEPTIN

Well ladies, that's my story and I guess I'm sticking to it (and not because
I want to) haha . It's been a long road but I can say that I have been enjoying my life to the fullest and plan to continue. So as you can see, cancer does not have to be a death sentence. Keep fighting and learning as much as you can about this disease and one day hopefully there WILL be a cure.

I will be making the BREAST CANCER 3-DAY WALK HERE IN TAMPA FOR ALL OF US.

Take care

[jojo]

There ya go....

[sherri]

Dx Dec. 23, 2004
Stage 3 & IBC
Invasive Ductal Carcinoma
High Grade Intraductal Carcinoma
Nuclear Garde 3, rate 3, tubular 3 = 9/9 poorly differ.
Lymphatic dermal invasion
ER/PR Negative
HER2 Positive 3+
Lymph node involved (but never done surgery)
Start Chemo ECT does dense 6 cycles (every 2 weeks)
12 days after last chemo, Left mastectomy
Path report after mastectomy:
No tumor after chemo
but still extensive involvement by residual intralymphatic high grade ductal carcinoma and involvement of dermal lymphatics
no evidence of residual invasive or in situ ductal carcinoma
maegins free of malignancy
45 days after 26 rads & started Herceptin every 3 weeks, will finish in June 2006
Jan 2006 UW Vaccine, the 3rd and last one in March 2006
Last Pet,Bone, CT, Mam, Ultrasound shows NED
It's a tough one but my oncologist thinks I can make it because I'm tougher.

[Petesmom]

Diagnosed 1998 at 45 years old with IDC 8mm tumor right breast,ER+ HER2- 11 nodes dissected none positive. Had lumpectomy with rads. No chemo, 5 years of Toremifene. No hx of bc in my family.

Diagnosed March 2005 with IDC with DCIS right breast 7mm, ER+, HER+++ (IHC test) no nodal involvement. Had mastectomy, was put on Tamoxifen, no chemo. Opted for ooph in October 2005 to be put into menopause and to begin Arimidex.
Annual mammogram in March on remaining breast showed NED.

Petesmom

[Valerie]

Hi All,
Diagonosed in Feb 2004 at age 49 after routine mammogram showed calcifications. No family history.
tumor .4 cm
nodes negative
er + pr indeterminate
her2neu+++
Lumpectomy April 1, 2004
4 rounds Adriamycin and Cytoxan because Oncotype Dx test showed a high probablility of recurrence.
Radiation
Started one year of herceptin in Nov. of 2005. Yes, that is late but it seems like a good idea.
I also had ovaries out due to cysts on both of them in 2004.
Femara.
So far the femara and herceptin have been ok. Now I just need to lose the weight I gained while on the chemo. Eat smarter and exercise more.

[Les]

Hi, Lump found during mamogram November 2003 Age 44, 1.3 cm I had a lumpectomy no nodes stage 1 I had 4 a/c and 37 rads.and now tamoxifen . er/pr+ Her2+++ no herceptin to far out from chemo my onc. didn't think I should take it.Love and peace to you all.
thanks Leslie

[hutchibk]

dx: Nov '03 @ 43 years old
invasive ductal carcinoma w/ paget's disease of the nipple
Rt side mastectomy w/ reconstruction (simple implant)
10 nodes removed, 1 positive
stage 2B
Her2neu +
ER/PR +
6 treatments TAC, finished May '04
Tamoxifen for a year, then switched to Arimadex

Very early recurrance discovered Aug '05
7 mm spot on muscle under implant
Rice sized tumor in node under right arm
5 microscopic spots in chest nodes
3 microscopic spots in lungs
Aug '05 - discontinued Arimadex
Sept '05-Jan '06 Carbo/Taxol/Herceptin
Dec '05 - added Aromasin
Feb '06 - all scans clear
Mar '06 - tumor markers continued to drop on Herceptin only
Apr '06 - tumor markers at 12, staying steady

Currently on Herceptin every 3 weeks + Aromasin
No apparent Herceptin side effects
June '06 - next Muga and CT

[chrislmelb]

Dx Sept 2003 at age 40. "lump"was lymph node with BC on it but no sign of tumor by mammo or ultrasound. Finally found primary after extensive ultrasound, bit of guesswork and several core biopsies.
ER+PR+ HER-2+++. 3/12 nodes involved. 23mm tumor. stage 2B
Sept 2003- partial mastectomy and aux clearance
Oct 2003- re excision but margins not clear
Nov 2003- mastectomy with expander inserted.
Dec 2003- May 2004 FEC x 8. (only one i know who had that many!!)
Aug 2004- expander changed over to silicone
Oct 2004- ovaries out
Took Tamoxifen and then changed to Arimidex last year. Oh my aching bones!
Nov 2005- started late Herceptin through HERA trial.

I think that is all!

[saleboat]

Here are my deets,
Jen

[Susan]

Dx 5-16-05, lumpectomy 5-24 at age 47
Stage I (1.1) Grade 3
Node Negative (3 removed)
ER/PR +
HER2 +
Finished 4 rounds of AC DD on 9-7-05
Finished 33 rads 11-28-05
Started 1 year of Herceptin 11-30-05
Started 5 years of Faslodex 11-30-05

[Marlys]

I found my lump when it caught on my bra 3/5/05 at age 66.
Mammogram and ultrasoound 3/8/05. Needle biopsy 3/9/05. Told of results 3/10/05: HER2/NEU+++, ER+++, PR+.
Lumpectomy & sentinel node biopsy 4/13/05: IDC 1.5cm high grade tumor, DCIS. Sentinel node negative. Stage 1.
Reexcision for wider margins and to implant port 4/25/05.
A/C x 4 starting 5/2/05 ending 7/5/05.
Hospitalized 6/24/05 for 3 days because of zilch neutrophils and low hemoglobin & hematocrit.
Started Herceptin 7/19/05 every 3 weeks for 1 year.
Rads x 30 ending 9/29/05.
Started Arimidex 10/11/05.
Mammogram 11/9/05 NED!!!
Muga scans every 3 months until onc decided LVEF was improving not going down. I thank exercise & COEnzyme Q10 for that.
I am walking in the Race For The Cure on May 13 with my daughter, daughter-in-law and 4 grandchildren. 3 more and we could have been a team!!
Love this site!
Marlys

[Shell]

dx 3/17/03 - age 40

IIIC/ER/PR-/Her2 +++/Grade 3
neo-adjuvant T(taxotere)E(epiruicin)C x4
lump/SNB
TEC x2
radiation, 3mo herceptin/navelbine
reoccurrance - had complete axilla dissection
herceptin/taxotere
reoccurrence - entered xeloda/lapatinib clinical trial 6/05 (xeloda arm only)
4/06 trial stopped due to positive results - we all now get lapatinib(tykerb)
will get re-scanned in june '06...
Shell

[Montana]

diagnosed 10/04

.6cm IDC with other areas of DCIS with comedo necrosis Stage 1 Grade 3 7/9 er+/pr+/Her2+++ 0/14 nodes

2 lumpys to get clean margins

Dose dense A/C X 4 - finished 2/05

33 rads - finished 6/05

Arimidex for 5 yrs

March 06 CT scan -- NED

[suzan w]

routine mammogram April 28, 2005
call back for suspicious 'spot'
May 18, 2005 repeat mammo and ultrasound-8mm 'spot'...told, "don't worry, it does not look like cancer"
May 23-biopsy
May 27-results...left breast-7mm tumor, invasive lobular carcinoma with LCIS...no clear margin. ER+, PR+, Her2 +
June 7, 2005 MRI..nothing unusual
June 14, 2005 bilateral mastectomy...sentinel nodes..2 on left, 1 on right...negative No other cancer found...
Diagnosis Stage 1 Grade 1
July 1, 2005 CT scan...spot on liver, bone scan-all clear
July 7, 2005 MUGA (65%), liver scan-hemangioma (nothing to worry about), oncotype DX (high intermediate risk of recurrence...)
Aug. 10, 2006 chemo...A/C first of 6
Sept. 7, 2006 to ER with high fever and infection...month break from chemo to recover
Only had 4 A/C treatments due to severe side effects
Oct. 20, 2005 MUGA (65%)
Oct. 26, 2005 first Herceptin...every 3 weeks for a year
Jan. 24, 2006 MUGA (65%)
CA 25/28 <3.5
next MUGA May 4, 2006

[suzan w]

ps!! Arimidex for 5 years!!