Worst News Ever!!!!

Lani · 04-19-2006, 05:19 PM

Not only is there conventional radiation therapy, but cyberknife/gammaknife, but also surgery. All have good track records IN PREVENTING PROGRESSION OF NEUROLOGIC TROUBLES (AS WELL AS REGAINING SOME NEUROLOGIC FUNCTION WHEN TREATMENT IS NOT OVERLY DELAYED)

Show them the articles posted if they are stubborn and tell them if they are oncologists or radiation therapists "WORTH THEIR SALT" they should seek out outside opinions if necessary, get together and discuss your case as a team and present you with a game plan.

Many oncologists think that palliation is all you can do for any Stage IVs "since they cannot be cured" TEACH THEM SOMETHING!

LANI

Maggie · 04-20-2006, 05:16 AM

Lyn, prayers for you and your family!

Maggie

MCS · 04-20-2006, 06:08 PM

Lyn,

We are all with you

XO

MCS (maria)

Lyn · 04-24-2006, 02:21 AM

Well apart from me being down, I couldn't get my broadband to fire up so manually dially up at the moment. I have been feeling the worst I have ever felt in my life,They say Hysteria is a sign of Brain mets, well that is the only symptom I have had for that, but how fast it is growing I have no idea, I had sort of a win win day, I was running late to see the radiation onc and phoned the hospital and the secretary was to pass it on, then I got a call 20 minutes later telling me where I was supposed to be, she said didn't matter the radiation onc had left, I thought great, but she said no stay home he had taken my MRI disc back to his hospital for planning and I am having that on Thursday, so for him to have left his his clinic at 10am he must have shut it down early, at least I have 2 radiation oncs in my corner, and my chemo is to stop until I have finished radiation, is this to save money or my health, the Gemzar/taxol/Herceptin seems to have worked for my underarm with the Aromasin of course and until I have another punch biopsy on my remaining breast I won't really know. I have a question, would thin blood to the C be worse or better for feeding it. I am a little confused on how anti-inflammatories work on some things. I tell you all, this is the scariest situation I have been in a long time, and it doesn't help looking like the hunch back from Notradam on Steroids, some morning I have got up feeling fine so that is when I put on my make up and do my hair and look just like Cabbage Patch Lyn, but other days it is a worry.

Love & Hugs to you all.

Lani · 04-24-2006, 09:03 AM

Think I missed something--no evidence that blood thinning itself is bad for C as cancer patients are more prone to blood clots in the leg and must stay on blood thinners for years once that happens (not been found to worsen their cancer) and, in fact, as I alluded to in the other post, in some cancers it increases the effect of radiation therapy. Ask your radiation therapist if he wants you to continue it and if not, when you can resume it. Best of luck!

Lyn · 04-24-2006, 09:11 PM

I must be failing, I have obviously misinterpreted your post, having another scare, I am slurring my words, and found it hard to swallow and eat lunch, I hope I am just tired, but my luck doesn't run that way, I always get 2 solutions, and it is always the wrong one, so if I am unable to post I will try and get my daughter to let you know.

Love & Hugs Lyn

karenann · 04-26-2006, 10:55 AM

Lyn,

Are you feeling better today? You are in my thoughts and prayers.

Karen