brain mets

[Annemarie]

I have had single lesion brain mets 3 times. I have had bc no where else except for the brain mets. It is manageable. I was orginally diagnosed nearly 6 years ago and the brain mets came a little bit over 4 years ago. All I can say is I am still here!
Annemarie

[Esther]

Annemarie, that's great to hear, 4 years and going strong with Brain mets. What type of treatment are you doing to manage your brain mets?

[al from Canada]

There is trial with xeloda and tremodar and another with lapatinib. Other than that, it's pretty slim pickings. Good luck getting into the ALLOS trial


What you should know is that these mets are very treatable, far more so than a brain primary tumor. Christine has had WBR and that was over 8 years ago?? There are survivors. Don't take your cues from body language as that is most often misinterpreted.
Good luck,
Al

[Kim in CA]

Just wanted to send some encouragement your way. As a fellow brain met inductee, I know how helpful it is to be able to compare what others are doing. I don't have alot to add as far as experience goes (I just had a single met treated with GammaKnife last August) but wanted to offer my support and remind you, that when things get overwhelming all you can do is just keep putting one foot in front of the other and never quit fighting. We just have to keep it at bay until they find the drug that is going to work for us.

Hang in there, you can do this

Kim

[Annemarie]

I have had single lesions all three times. My lesions were 3cm, 5mm and 7mm. I have had 2 craniotomies the first time followed by WBR and Temodar. My last lesion was removed with gamma knife. I went back on Temodar and get Herceptin once every 3 weeks. I feel great, look fine, I am married, have a career and a baby boy (via surrogacy). So there is plenty of hope!
Warmest regards,
Annemarie