Taxol & Herceptin

LisaJ · 01-24-2006, 01:29 PM

Thank you so much for the response. I was diagnosed at Stage IIIA with 7 of 12 lymph nodes involved. I had a lumpectomy in December. Despite the lymph node involvement I had clear scans which I was so thankful for. I will start radiation after the Taxol and Herceptin and then be on Herceptin for the rest of the year. The last year and a half has been a long road for my family. My mom just passed away last Monday of lung cancer after battling a 1 1/2. For the first time I am coming to terms with my diagnosis. I have a 2 1/2 year old little girl who is the light of my life. It scares me to think I won't see her grow up. I am going to do everything I can to fight this.

Did you have 12 treatments of the Taxol/Herceptin? Did you take those supplements during your treatments?

CherylS · 01-24-2006, 01:32 PM

Lisa, Yes, I had twelve weekly taxol/herceptin and then went to herceptin alone every three weeks for the remainder of 1 year. Yes, I took the B-6 and L-Glutamin during the taxol/herceptin and never experienced any neuropathy. I don't remember the doses. They were recommended here by several of the ladies. Maybe a search would turn up the dosages. Let me try it and get back to you.

CherylS · 01-24-2006, 01:38 PM

Lisa,

I found a recommendation for 5 grams of L-Glutamine and 50-100 milligrams of B-6. I believe this is what I took too. Keep fighting. We have a lot in our corner, and that beautiful daughter is all of the inspiration you need.

I will pray for you.

LisaJ · 01-24-2006, 01:44 PM

Thank you so much Cheryl. What is your diagnosis? Are you still in treatments?

al from Canada · 01-24-2006, 01:44 PM

I would also consider 100 mg CO-Q10 2 X DAY for protection from the anthracycline / herceptin cardio-toxicity.

Good luck,
Al

CherylS · 01-24-2006, 03:59 PM

Lisa, for sure, add the COQ10. I didn't think to mention it before. Thank you Al.
I so far have been one of the fortunate Lisa. I found my own lump early, and it was still stage 1. Her2+++, ER+, PR-, grade 3. When I see such stories of courage such as yours I feel guilty about the fear that still grips me. You keep fighting. There are so many success stories, and with God's help you will be another of them.

01-24-2006, 04:08 PM

I had some neoropathy and was prescribed 50mg B-6 in morning the 100mg at bedtime it seemed to do the trick. Good Luck.

Sandy H · 01-24-2006, 04:31 PM

I was taking 100 mgs of B-6 until I talked to an oncologist/hematologist in San Antonio who told me only 25 to 30 mgs a day because it can cause neuropathy! He had worked at MD Anderson. So then I cut back on it thinking he should know. hugs, Sandy