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11-09-2005, 11:24 PM
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#1
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Guest
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Are your rings and/or shoes tighter?
Herceptin can cause peripheral edema--ankles, feet, wrists and hands look a little puffier than normal --carrying around a little extra water everywhere is like carrying around several liter sizes of sodapop. They quickly add up to a lot of weight! Are your rings feeling tighter? If this description fits your weight gain, then the excess weight (from water retention) should probably come off quickly and easily once herceptin is stopped.
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11-10-2005, 08:25 AM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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I have been on Herceptin 2 years and have managed to put on 24#. Dieting, exercising and healthy foods do not seem to help....I guess its a small price to pay for what the Herceptin does. If you do notice that your ankles and hands are swelling, notify your Dr....it could be a sign of cardiac issues related to the Herceptin. You may need a Muga to verify.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-10-2005, 10:17 AM
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#3
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Hi,
I also experienced some water weight gain(had puffiness in ankles) the first couple years on Herceptin. I eventually asked my Onc to prescribe a mild diuretic and that helped alot. I have since weaned myself off of it and try to stay physically active. Seems to be working, cause my weight doesn't fluctuate much at all anymore and I am basically at my pre-cancer weight (except for the annual holiday weight gain!). So maybe it just takes time for our bodies to adjust to the Herceptin
Kim in CA
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11-10-2005, 12:35 PM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 823
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Herceptin Weight Gain
WELL, I guess that explains it !! LOL
I wasn't aware that weight gain could happen on Herceptin.
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11-10-2005, 06:46 PM
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#5
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Senior Member
Join Date: Sep 2005
Posts: 52
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Holy cow, I thought I was gaining weight from the tamoxifen. If it is from the herceptin too then I am in big trouble. I cannot get my wedding ring off, my shoes are tighter, and I feel bloated all the time.
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11-10-2005, 07:49 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Every time I step on the scale, my weight is up. Have gained about 15 pounds in 8 months. Have been on Herceptin about 5 1/2 months. Have discussed the weight with my onc and also an endrocinologist. Neither have had any magical advice as to how to shed the pounds! The thyroid is a little sluggish, but can't do much about that.
My clothes don't fit and I am short, so 15 pounds is huge. So in the meantime, I walk my legs off, and try to eat sensibly. I have never dropped weight quickly in my life, so doubt very much that the weight will fall off after finishing the herceptin.
But, if the herceptin works, no further complaints here!!
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