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Hi Hope -
Feel bad about your headaches, as I have not been cursed with them so far.
I DID suffer with the Decadrom for my inflammation, but am now off it and feeling better.
Do you think that a smaller dose of Decadron to get the edema down may be the only solution?? Is there another drug that does the same thing without such bad side effects??
Wish I had a better answer, but you will need to do something about the edema if it is contributing to headaches.
Have been taking my herceptin infusions every 3 weeks and this does not seem to have affected my Gamma Knife (or vice versa) outcome. Neither one bothered me to speak of.
Wish you well!
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