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Hi Cathy,
I have been on this combo wkly since Feb. It's hard on your blood counts and I've had to skip a wk here and there but not recently. My onc sd she was going to decrease the dosage slightly to help my white count out (I get Aranesp biwkly for red count), but I'm not sure she did and it's been OK lately. (I'm needle phobic so doing my own shots is out, and there's not enough time between for the shot that you get about every 2 wks). Aloxi as a premed stamped out the slight queasiness I felt on treatment day, and the only other thing that's been a problem is neuropathy in my rt foot...the 3rd, 4th, 5th toes and part of the "padded" area. Not completely numb but definitely affected. I started 30 mg of L Glutamine daily (as recommended on this board) to hopefully keep it from worsening. Hands seem to be OK. Fingernails have split, but I just cut them back...I don't like them long anyway. Only other thing is that my hair seems dry and brittle, so I've been conditioning like crazy. That's about it for me. My tumor marker seems to stay steady, no increase, no decrease, and recent scans of the bones, chest & abdomen (sp?)show no progresstion but no decrease either. I requested an MRI of the head after recent postings recommending it here, and there were 2 small spots. However, no way of knowing how long they'd been there. No symptoms, but I'm getting ready to have them addressed. Hope this helps and that this combo is very effective for you and beats that cancer back!
Love, Jackie
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