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Old 09-05-2004, 07:29 PM   #3
Caroline
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Jo Jo

I am 38 (soon to be 39) and my cancer was discovered April 02 and soon after that I was discovered to have mets in my spine. I had mastectomy (before mets were discovered)and a choice about chemo, after thinking long and hard I opted for Tamoxifen plus monthly Pamidronate (Aredia). I should say that my cancer is grade 3, hormone positive and HER2+++, apparently very aggressive. I also had an ovarian ablation to cut down on my hormone levels. I did okay, but Tamoxifen did not really do it for me and markers continued rising. So at the start of this year I got my onc to start me on Herceptin plus Arimidex (something currently being trialled here in the UK - not sure if it's standard treatment in the US). THis has done well for me so far, but will have to choose again soon about chemo (which I have never had) or more hormonals (faslodex).
The thing about markers I think, is that accuracy varies - mine seem to reflect pretty accurately what is going on therefore we use those as an indicator. Personally I would hate to have scans so often as I hate to feel "medicalised" if you know what I mean! However in any case, being in the UK means that we are treated by the NHS who probably do not want to fork out unless there is a reason to suspect a problem or a period of 10-12 months has elapsed.
Interesting to hear about your monitoring, am assuming you are in US. Is this correct?
Love and Healing
Caroline xxx
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