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Michelle,
I was wondering the same thing. If you look up Genentechs web site, they say how her2 is more aggressive and has a poorer prognisis with Metastatic bc, because that is all they have a label for.
Then you hear from somewhere, and it is in posts that the higher the grade the better response, but not at genentech? They tell you about on going or closd studies but you can not find any data on them, I hope the link Joe provided that they will be listed.
Where does the info come from. It's not being reported by the company that makes it... Are they individual studies from out sourcing? I know I was told at the beginning that I have a 50% chance of this not coming back. My radiologist said from what she has seen is IF it comes back it is usually within 2 years. She didn't mention node involvement. Who really knows. Remember we are the ones the study is being done on and all the results are not in. But it is frustrating.
My breast surgeon told me that er/pr positive if caught early had a 76% chance of a cure and it would rise to 90% if the individual attends one support group meeting. They can run studies on that but they can't tell us anything.
I like your motto, but it's not the last chapter, it's just one chapter in your life, and when you are NED other chapters will open up. I know you know that, your too positive not to. Hope this makes sense as this is done in the early am, another sleepless night. take care k
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