Today marks 9 years living with cancer; stage 4 - HER2 Support Group Forums

		HER2 Support Group Forums > her2group
Today marks 9 years living with cancer; stage 4

Reply

04-21-2016, 02:00 AM	#1
Pamelamary Senior Member Join Date: Apr 2012 Location: Melbourne, Australia Posts: 494	Re: Today marks 9 years living with cancer; stage 4 Flori, you have made me cry - but that is a good thing! Congratulations on making 9 years and best wishes..... Pam __________________ Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+, C-erbB-2 status 3+. Clear margins, no nodal involvement. Radiotherapy, i year Tamoxifen, 4 years Arimidex. Rediagnosed 2012: Multiple bone metastases. 3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo. 5/12:Unexpected development of numerous bilateral liver mets. Came off trial. Started Docetaxol/ Herceptin + Zometa. 8/12:Bones stable +major regression in liver (!) 9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers! Changed to Denosumab. 11/12: Scan shows stable - yay! 11/13: Still stable :-) !!! 1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly. 2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.

04-21-2016, 06:13 AM	#2
dawny Senior Member Join Date: Oct 2011 Location: Geelong, Australia Posts: 250	Re: Today marks 9 years living with cancer; stage 4 Wow, Flori, great post! Thanks for sharing. Xxxx __________________ Dx May 27 2011, age 43 Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck HER2+ ER/PR- Abraxane weekly - 16 weeks Herceptin every third week September 26 2011 N.E.D! Herceptin ongoing 8th Dec 2011 Brain MRI - clear 20th Dec 2011 bone/cat scan clear still NED April 2012 scans show axillary node lump - ? what to do... June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial July 2013 stable Oct 2013 progression off TDM-1 (Kadcycla) Nov 2013 radiation to lymph nodes in sternum Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work! April 2014 NED. On Herceptin only August 2014 NED. On Herceptin only March 2015. NED. On Herceptin only September 2015 NED on Herceptin only March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative. Can’t give self injections on to tablets (Xarelto) for blood clots. 2017 NED - On Herceptin only 2018 NED - On Herceptin only 2019 NED - On Herceptin only 2020 NED - On Herceptin only 2021 NED - On Herceptin only

Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads You may not post replies You may not post attachments You may not edit your posts BB code is On Smilies are On [IMG] code is On HTML code is Off Forum Rules

All times are GMT -7. The time now is 10:37 PM.

free webpage hit counter