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				Join Date: Oct 2005 Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW... 
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				Re: Why i take supplements
			 
 Hi Juls, and ALL,
 I recurred in August iof '98.  I began chemo in Sept of that year.  Herceptin (Vitamin H as I like to call it) was fast tracked by the FDA on September 28, 1998.  I was sooo lucky.  After 2 mnths of Taxotere, doing CTs chest/abd/pelv, I added H.  Docs wanted to see if Taxoterror was working.  It was.
 
 I had asked to be tested in August upon recurrance throughout my liver, as my husband and I had been keeping on top of all things bc since July of '95 when I was originally dx.  I was 80% positive for HER2.  That's how they graded back then.
 
 I went to my integrative oncologist in Manhattan in October of '98.  He gave me a longgg list of supplements.  I researched each one, took notes, started one at a time.  Waited 4 days to see what my body had to say, and if all was well, I proceeded to the next on the list.  I believe I began with immune system boosters.
 
 When I mentioned to my mainstream docs what I was planning on doing, each and every one balked.  They felt it would be best for me to wait till after chemo.  That didn't feel right to me.  I asked my integrative onc or nutritional oncologist (who also taught meditation and holistic mind body spirit medicine, which felt exactly right to me) and my nut onc as I lovingly call him said, NO, IT'S WHEN YOU'RE ON CHEMOTHERAPY THAT YOU MOST NEED TO BE ON SUPPLEMENTS.  Your body is under further attack then.
 
 I (bravely) chose to follow his advice and began my supplements in October of '98.  I still believe it was the right call.
 
 I developed shingles in October, which I discovered getting a 4th opinion.  Wanting to collect information and ideas from each who were all brilliant but each saw the situation slightly differently.  I based my opinions, as the patient whose life we were talking about, on the collection of information I gathered.
 
 The horrid news was that with shingles -- you cannot get chemo.  I KNEW I needed the chemo to save my life.  I also knew some had shingles for months, even yrs.  I was desperate.
 
 I have a book PRESCRIPTION FOR NUTRITIONAL HEALING by Phyliss Baulch, that was recommended to me and I started immediately taking supps for shingles, along with the medication prescribed for it.  10 days later I went to the oncologist.
 
 He smiled and asked me how I was doing.  Good, I said.  Really?  Yup.  Well, let me see.  I was dressed on the exam table.  I lifted my shirt.  He walked all around and said, with great surprise, You're right!  All the pustules have crusted over and are healed.  You can have chemo!
 
 And, I was elated, even though Taxoterror was a ride through hell.  I KNEW in the end, I would live!
 
 So long answer to a short question, I know.  Sorry.  But cancer isn't so simple.
 
 You are in a great place, on this site, with women who are full of experience and wisdom and generous with their advice though respectful.
 
 Please feel free to ask me anything.  I am here to help.
 
 Also, please check out Pink's post of AndiBB's article -- that's me.  It was posted today as today was the day this article appeared in the Florida Sun Sentinel in Broward and Palm Beach.  I hope you find it interesting and inspiring.  That would actually make my day!!
 
 Thanks,
 Andi
 
				__________________Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
 
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
 
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...!  REMAIN STABLE...  Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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