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Re: early Christmas present--10 yr overall & bc specific survival results just publis
I'm looking forward to seeing the upcoming documentary too.
It is meaningful to provide encouragement for those who just want to be told the treatment will work (whether it actually will for them personally or not), because treatment has improved for many HER2 positive patients.
But maybe there is room for some genuine practical support of the group of people who have done that same extensive, expensive and difficult treatment with no personal benefit at all? What do we say to help improve their situation? "It really is too bad.... that treatment is a miracle for some like us, you know.... even though many early stage patients never needed it at all, it is a great idea to continue to throw their money and time away.... it never did work for everyone... maybe someone will figure it out someday, somehow.... it is okay, you did your best... maybe you'll be lucky enough to find the right combination in time... best of luck... stay in touch?"
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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