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Old 12-21-2014, 01:20 PM   #1
Dakini52
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Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I have been on Herceptin for almost 5 years now and continue to be NED so far. I began receiving Herceptin after a local recurrence in early 2010. I receive the treatment every 3 weeks and will continue indefinitely, potentially adding Perjeta as another way to block any recurrence. The symptoms I have are a runny nose, weakened fingernails, some joint pain. Each time I receive the infusion I do have mild flu-like symptoms, however by the next day they pass. Compared to other chemotherapy drugs I have taken it's pretty darn easy.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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Old 12-21-2014, 03:40 PM   #2
Dakini52
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Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I forgot to mention that I also have continuing issues with my eyes. I seem to tear constantly and my eyes are always somewhat irritated. Didn't have this before the Herceptin so am thinking it is probably a side effect.
__________________
Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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Old 12-22-2014, 12:51 PM   #3
Cif
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Join Date: Aug 2014
Posts: 15
Re: Please post your two cents on Herceptin "side effects" real or perceived!

oh yes, the itchy eyes and red rims. Today so thrilled, toe nails finally grew to meet the end of the toes, took from April till Dec. The finger nails are like rice paper still, peel, bend, flake off. Hair starting to get real thin on top, that is a bit scary after just getting it an inch long and super thick. My Dec 1 Herceptin treatment was greeted with poor liver function blood test results, but I'm confident that was from breast reconstruction the week before, read on internet bruising/damage to body tissues can make those numbers high, suspect I'm right since numbers are going back down.

Anyone with pull to get me into GP2 trial please contact me. Thank you. Wishing all a New Year of improved health and happiness.
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