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Old 11-03-2014, 06:49 PM   #1
jacqueline1102
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Join Date: Apr 2012
Posts: 183
Re: Stage IV and half marathon

Thanks everyone for your kind words. I think we are all in this thing much like a marathon; it's not a sprint. Just keep putting one foot in front of the other.

Take care,

Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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Old 11-16-2014, 01:11 PM   #2
Fighting fire
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Join Date: Feb 2014
Posts: 33
Re: Stage IV and half marathon

Thank you- I just registered for my first half marathon and reading this post gives me more encouragement to begin training! I initially decided to do it for an acquaintance who just lost her 5 year battle to the beast 2weeks ago, but now I'm doing it for ME and MY recovery. I was living my life so scared that every little pain was cancer rearing it's ugly head again, and I'm happy to say (today at least) I'm living in the moment. And happy that I received those drugs that got me a complete pathological response. My young boys are learning a great deal about how to be an overcomer and a fighter from their momma. I will train for this 13.1 mile journey as a survivor and will take all of my anger about this awful disease on my runs.
Congrats to you. You are very inspiring:-)
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(Insert... I had my 2nd son at 26 weeks... for the first 15 months of his life I pumped around the clock for his nutrition. Since then-Sept 2012- my breasts went under a huge transformation. That led me to find my lump, I believe...)
Mid september 2013- found a lump in right breast
Had annual already scheduled for Oct. 2nd, where he said he wasn't impressed with the lump, but I urged him to order me a mammogram.
Oct. 14th- At the mammogram the technician said he should've ordered me a diagnostic one...
Oct. 28th- got a call to come back for diagnostic mammogram.
Oct. 30th- diagnostic mamm and ultrasound revealed something suspicious, and a cloudy lymph node. Couldn't get me in for biopsy for 2 weeks
Nov. 1st- called around to another hospital to see if I could be seen earlier... Nov. 4th biopsy scheduled.
Nov. 4th- ultrasound guided needle biopsy, they felt the lymph node looked fine & didn't biopsy.
Nov. 7th- DIAGNOSIS...
Nov. 11th- pathology reveals ER-/PR- HER2+++.
Nov. 13- Met with BS- discussed 85%+++ chance of beating this, neoadjuvant therapy will be best approach.
Nov 14-22-pre-chemo testing. All scans came back unremarkable except for breast MRI revealing something suspicious on left breast also.
Nov. 25th- Began TCHP every three weeks until March 10, 2014!!!
March 31st- began Herceptin only, radiologist says "congratulations, you've had a complete response to the chemo!" Very lucky.
April 15th- lumpectomy/SNB. Pathology reveals clear margins and negative nodes! Time to celebrate!
May 13- June 24- 28 radiation trmts to lumpectomy area, node biopsy area, and sub-clavicular node region, followed by 5 'boost' rads to lumpectomy area only.
Finished with radiation!!!
Herceptin only every 3 weeks until October.
October 27th last Herceptin!!!
November 17th port removed!!!!
P.S. My picture under my user name was taken July 11th after my first trim and color since starting my fight back in November!
July 2015- PET scan results- NED!!! Popping the champagne!
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