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Old 09-14-2014, 05:39 PM   #18
RedHen
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Join Date: Jan 2014
Posts: 109
Re: Update on lymphedema ?

I could not agree more. It's finding a therapist that's the problem. Some "schools" issue a certificate for a two-week online course or something similar. I went to two certified therapists, one of whom was associated with a hospital, and neither one really knew much. I have learned a lot on my own researching the 'net, and I agree that a bad sleeve can do more harm than good. I've also learned that there is an art to wrapping and that it's not just winding the stuff around the arm. I can actually manipulate the fluid pools by adjusting the pressure of the bandages.

I think I'm pretty much on my own at this point, but I'm not giving up. I've got a lead on a therapist in this area and will check her out. Until then, I'm doing the best I can with the three different styled sleeves that I have and my night-time bandaging. I can't believe there is so little research being done in this area - but I guess there's not enough money in it. Sigh.

Thanks for your post. It's good to talk to anyone who knows the problem. :-)
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Bilateral mastectomy w/sentinel node biopsies, December 20, 2013
12 nodes positive; stage IIIb
Began chemo January 21, 2014

Priors:
Partial colectomy, January 1996
Radical colectomy, March 1996
Crohn's & GERD
Gluten sensitivity
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Relapsing polychondritis w/tracheomalacia and neuropathy in feet
Vasculitis
Sjogren's syndrome
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