news from ASCO-- some joyous, some a downer--may set things back a bit

[evlin75]

it is a constant struggle to get new medications so the cancer patient can keep going. I d not think the expense is wasted as these patients are in LIFE"S clinical trials, as they try new medications and try to get them to work. My daughter has tried most of the approved medications and is now looking at afatinib and neratinib as these two were what the genomic testing by Foundation One suggested might work for her.
I do not have proof as it happened so long ago but believe all the weird mutations they found on my daughter's testing were caused by DES. I was treated to prevent miscarriage while pregnant with my daughter.
I wish all here the best and hope something works for each for more quality time.
Daughter has been stable except for a large subclavicle cluster of nodes that the chemo was not controlling so she has had a series of cyber knife tx to try to eradicate the mass.
Luck to all,
Ev

[StephN]

Evlin -
I have not noticed a mention of DES on this board for a while. Our founder, Christine, was a DES baby!

If you do a search for DES here, you should come up with a thread that was quite revealing as to how many of the members here had heard of that bad drug and how many of their mothers had been given it.

We have also talked about how many of us were in the mosquito sprays or followed behind the trucks spraying our neighborhoods. Also talked about suburban housing developments we live in that turn out to be where mines and other pollutants and poisons are found deep in the local soil.

Each of us seems to have been exposed to various toxic substances early in life.

Sending positive, healing wishes for your daughter.