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Surgery Tomorrow

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05-06-2014, 01:14 AM	#1
Pamelamary Senior Member Join Date: Apr 2012 Location: Melbourne, Australia Posts: 494	Re: Surgery Tomorrow Best wishes for a successful surgery, Marie. Will be thinking of you and waiting to hear news..... Pam __________________ Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+, C-erbB-2 status 3+. Clear margins, no nodal involvement. Radiotherapy, i year Tamoxifen, 4 years Arimidex. Rediagnosed 2012: Multiple bone metastases. 3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo. 5/12:Unexpected development of numerous bilateral liver mets. Came off trial. Started Docetaxol/ Herceptin + Zometa. 8/12:Bones stable +major regression in liver (!) 9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers! Changed to Denosumab. 11/12: Scan shows stable - yay! 11/13: Still stable :-) !!! 1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly. 2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.

05-06-2014, 03:46 AM	#2
dawny Senior Member Join Date: Oct 2011 Location: Geelong, Australia Posts: 250	Re: Surgery Tomorrow No advice, sorry Marie, but lots of Good wishes being sent your way! Dawn. Xx __________________ Dx May 27 2011, age 43 Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck HER2+ ER/PR- Abraxane weekly - 16 weeks Herceptin every third week September 26 2011 N.E.D! Herceptin ongoing 8th Dec 2011 Brain MRI - clear 20th Dec 2011 bone/cat scan clear still NED April 2012 scans show axillary node lump - ? what to do... June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial July 2013 stable Oct 2013 progression off TDM-1 (Kadcycla) Nov 2013 radiation to lymph nodes in sternum Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work! April 2014 NED. On Herceptin only August 2014 NED. On Herceptin only March 2015. NED. On Herceptin only September 2015 NED on Herceptin only March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative. Can’t give self injections on to tablets (Xarelto) for blood clots. 2017 NED - On Herceptin only 2018 NED - On Herceptin only 2019 NED - On Herceptin only 2020 NED - On Herceptin only 2021 NED - On Herceptin only

05-06-2014, 05:30 AM	#3
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Surgery Tomorrow Good wishes and happy thoughts. I will be thinking about you. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"

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