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Old 02-21-2014, 07:59 PM   #2
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,747
Re: Scanxiety

The worry never seems to end! I had a pain in my right kidney area which let to me wondering if my pants were too tight...or perhaps the seat belt was too tight? The next day I felt worse...and Dr.Google found a condition that included tight pants causing pain and numbness. Aha...yea, I was starting to have an area of numbness, burning and itching. The next day, after consulting with Dr. Google I knew it was a tumor in my neck compressing the nerve. A few more days of very uncomfortable numbness and itching on my right side it was making it uncomfortable to sleep.
Today I finally broke down and cancelled my appointment with Dr. Google...and went to see.my primary care doc. Even her nurse knew what I had...when the doc came in she listened to my tale of woe. And told me the dreaded words... I have SHINGLES.
What??? SHINGLES??? Go figure...Dr. Google must have slept through that lecture!!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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