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Old 02-05-2014, 10:12 AM   #1
crb
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Nodes are CLEAR! But big haircut tomorrow :(

So happy, just wanted to share the news! Sentinel node biopsy from last week showed the 3 nodes she took were all clear I'm always up for more good news...

Going for a major haircut tomorrow. Think it might be easier on me when it starts to fall out...my hair now is the longest it has been in almost 20 years, so through all of this - loosing my hair has been the hardest thing to hear. Going for a short, chin-length bob and dyeing it darker to match the wigs I just spent a small fortune on. Maybe then it won't be as traumatic??
__________________
1/17/14 Day after 44th b-day, Got dx of 2 malignancies Rt breast; ER/PgR- HER2+
1/21/14 Biopsy of spot on left; normal
1/28/14 PET scan - CLEAR!
1/29/14 BRCA normal!
1/31/14 Sentinel node biopsy
2/5/14 Nodes are CLEAR! Stage I/IIa, N0, M0
2/13/14 Start Chemo, 6 rounds for 18 weeks prior to surgery
2/28/14 Port placed
3/6/14 Chemo Round 2
3/27/14 Chemo Round 3 (halfway done!)
4/11/14 u/s shows 2cm tumor about 2x5mm now!
4/17/14 Chemo Round 4
5/8/14 Chemo Round 5 and Daughter's Birthday :)
5/27/14 Last Chemo Party - Round 6
6/17 14 Herceptin only until next Feb.
6/20/14 BMX/Immediate reconstruction DONE
6/30/14 Path report back...NED!
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Old 02-05-2014, 01:11 PM   #2
tricia keegan
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Hi,

Great news on the nodes and I'm really happy for you, its always best to cut your hair as short as possible before chemo, or shave it off if you're brave enough as its a lot easier when it begins to fall out!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-05-2014, 04:02 PM   #3
caya
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Happy the SNB came out clear - great news crb.

I agree with Tricia, I would get a short haircut - the pixie cut is right in style now. Personally I would not waste the money on the dye job, but do what makes you feel the most comfortable.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 02-05-2014, 04:30 PM   #4
crb
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Why is it that I was most devastated by the news of loosing my hair?? I was just about set on a bilateral mastectomy (until now having to do chemo 1st), with little hesitation, but completely broke down about the hair. The only rationale I can come up with is that I could hide any surgery, but once the hair goes, it is a beacon to the world that I am sick - I feel fine so far, and really don't want sympathy from anyone. Is this normal or am I just being a stubborn, TypeA control freak??

Tricia~ absolutely NOT brave enough to shave it off...I burst into tears Saturday when looking at wigs with my mom and daughter. They are in boxes in the closet and I haven't even shown my hubby yet

Caya ~ I'm treating myself to the dye job for 2 reasons - my last hurrah with my stylist who I won't need for the next year, and my roots are so darn bad (dark w/grey) with the rest of my highlighted hair turning a beautiful blonde/orange shade. Thinking going dark and short to match the wigs might be less noticeable for when wig time comes. Oncologist said the hair loss may come a bit after the 2nd treatment, so I should have about a month left...
__________________
1/17/14 Day after 44th b-day, Got dx of 2 malignancies Rt breast; ER/PgR- HER2+
1/21/14 Biopsy of spot on left; normal
1/28/14 PET scan - CLEAR!
1/29/14 BRCA normal!
1/31/14 Sentinel node biopsy
2/5/14 Nodes are CLEAR! Stage I/IIa, N0, M0
2/13/14 Start Chemo, 6 rounds for 18 weeks prior to surgery
2/28/14 Port placed
3/6/14 Chemo Round 2
3/27/14 Chemo Round 3 (halfway done!)
4/11/14 u/s shows 2cm tumor about 2x5mm now!
4/17/14 Chemo Round 4
5/8/14 Chemo Round 5 and Daughter's Birthday :)
5/27/14 Last Chemo Party - Round 6
6/17 14 Herceptin only until next Feb.
6/20/14 BMX/Immediate reconstruction DONE
6/30/14 Path report back...NED!
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Old 02-05-2014, 04:48 PM   #5
Jackie07
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Glad the nodes are clear!

Now, about the hair dye ... When my Mother was diagnosed with Non-Hodgekins Lymphoma when she's 75, I did some digging and found that 'black' hair dye could be related to her cancer. Later when I was diagnosed with breast cancer and then 2nd Brother was diagnosed with colon cancer, I found the Lynch syndrome - a familial cancer cluster - that seems to explain the cancer incidents in our family.

Mother went through all the treatment and lived till 90.
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Old 02-05-2014, 05:32 PM   #6
IrvineFriend
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Re: Nodes are CLEAR! But big haircut tomorrow :(

crb, for me personally but I was odd in this way, I had no problem losing my hair. Traumatic YES. But I was tired, didn't feel good and not having to deal with another appt. of any kind (hair cut) was a pure gift. I could get up and not have to do anything with my hair. I was working full-time + so that might have contributed to the overall sense of lethargy as I was very tired, but it was a welcome vacation of doing anything at all. I wish you luck, and there are very cute hats and with weather warming up, it might be cooler too.
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Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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Old 02-05-2014, 06:26 PM   #7
jaykay
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Re: Nodes are CLEAR! But big haircut tomorrow :(

I didn't like losing my hair either - as you said, it tells the world that something isn't right. I'm a naturally curly girl and bought a straight wig because I didn't want to deal with frizz other than my own. My friends walked right by me the first time; it was kind of cool to be incognito when I wanted to.

I hate to tell you - but if you are doing TCH, your hair will probably start falling out about 14 days after the first chemo. But I can understand getting the cut & color. Do whatever makes you feel good.

I never shaved my head - buzzed yes, shave no. Had some (very very little) hair throughout and it provided a little cushion for the wig.

You'll be fine. It is amazing how fast you can get ready in the morning when you just have to plop on the wig.

Best
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 02-05-2014, 06:49 PM   #8
Laurel
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Re: Nodes are CLEAR! But big haircut tomorrow :(

crb,

Most excellent news on the nodes! Hip Hip!

As for the hair, it is not all that bad. Honest. When mine started failing out like a molting bird, I just could not STAND it, so I took charge by grabbing the dog clippers and heading outside to the patio. Mission accomplished. Swept it up and found it really was not an issue for me EXCEPT when my eyebrows got radically thin and I lost my lashes. Learned how to draw a line on my lids, upper and lower, to mimic lashes. Filling in the brows was artistry, but kept me from looking sick. Then it was OVER and my lashes began growing in almost immediately. Hair was back in a few months. Had fun with scarves, wigs, make-up, and BIG earrings. You will too and then it will all be behind you.
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 02-05-2014, 07:30 PM   #9
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Re: Nodes are CLEAR! But big haircut tomorrow :(

I agree with Laurel.

Loosing the hair wasn't a big deal and I had an absolute blast wearing all kinds of wigs, hats, scarves. I got a free pass to be as outrageous as I wanted to be. I just loved pulling off my wig and "surprising" people.

Didn't mind the baldness---but I HAD to put on my eyelashes everyday!

Go figure.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 02-06-2014, 08:32 AM   #10
LeahM
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Once someone asked me how I tied on my scarf so nicely. Then she asked me why I was wearing it. I too thought it was like a neon sign over my head blinking "I HAVE CANCER" but that lady didn't think that, she just thought I looked nice.
__________________
39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
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Old 02-06-2014, 09:18 AM   #11
crb
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Re: Nodes are CLEAR! But big haircut tomorrow :(

THANKS! As usual, you ladies are the best and put a smile on my face! Talked to a friend from a long time ago, who had BC about 12 years ago. She told me when she first started wearing her wig, she got compliments on how cute her hair looked and realized it really WAS cuter than her own hair and people had no idea what was going on.

Thank goodness hubby has a sense of humor - I threatened to go blonde (or get a different color for each day of the week) and his only comment was "Will you get ready quicker??"
__________________
1/17/14 Day after 44th b-day, Got dx of 2 malignancies Rt breast; ER/PgR- HER2+
1/21/14 Biopsy of spot on left; normal
1/28/14 PET scan - CLEAR!
1/29/14 BRCA normal!
1/31/14 Sentinel node biopsy
2/5/14 Nodes are CLEAR! Stage I/IIa, N0, M0
2/13/14 Start Chemo, 6 rounds for 18 weeks prior to surgery
2/28/14 Port placed
3/6/14 Chemo Round 2
3/27/14 Chemo Round 3 (halfway done!)
4/11/14 u/s shows 2cm tumor about 2x5mm now!
4/17/14 Chemo Round 4
5/8/14 Chemo Round 5 and Daughter's Birthday :)
5/27/14 Last Chemo Party - Round 6
6/17 14 Herceptin only until next Feb.
6/20/14 BMX/Immediate reconstruction DONE
6/30/14 Path report back...NED!
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Old 02-06-2014, 05:06 PM   #12
Rolepaul
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Your hubby and I would get along. NO sentinel nods is incredibly good! All I can say is that it made no difference to me whether my wife was bald, in a wig, or in a scarf. I just wanted her to get better and live life. She has done that incredibly well. I would take nutritional supplements before you start chemo, do not worry about any weight gain, walk as much as you can (or dare), and enjoy the fact that you have a lot longer to torment your husband. And lastly, get a blood test every year and make sure you record the results. Stay on the site to motivate others.
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Old 02-06-2014, 08:27 PM   #13
crb
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Rolepaul:
You made me cry...it is true - I doubt hubby would care if I shaved my head right now. I just came home from chopping about 8" off and he said it looked cute Daughter also commented to me this morning (after I sadly said this was my last day w/long hair) that I should be HAPPY because the cancer hasn't spread!

And honestly, I AM happy ~happy I found this early, happy I have very good fighting chance to beat/cure this, and happy that I now know I need to slow down a bit to enjoy my life and wonderful family...
__________________
1/17/14 Day after 44th b-day, Got dx of 2 malignancies Rt breast; ER/PgR- HER2+
1/21/14 Biopsy of spot on left; normal
1/28/14 PET scan - CLEAR!
1/29/14 BRCA normal!
1/31/14 Sentinel node biopsy
2/5/14 Nodes are CLEAR! Stage I/IIa, N0, M0
2/13/14 Start Chemo, 6 rounds for 18 weeks prior to surgery
2/28/14 Port placed
3/6/14 Chemo Round 2
3/27/14 Chemo Round 3 (halfway done!)
4/11/14 u/s shows 2cm tumor about 2x5mm now!
4/17/14 Chemo Round 4
5/8/14 Chemo Round 5 and Daughter's Birthday :)
5/27/14 Last Chemo Party - Round 6
6/17 14 Herceptin only until next Feb.
6/20/14 BMX/Immediate reconstruction DONE
6/30/14 Path report back...NED!
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Old 02-06-2014, 10:44 PM   #14
Saygoon
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Re: Nodes are CLEAR! But big haircut tomorrow :(

I understand about losing your hair - I felt the same way. My hair was almost to my waist. But.....(there's always a but) when it started to fall out my scalp got really sensitive. I was actually a relief to get my head shaved!! I too had fun with scarfs and hats. Now that my hair has grown out just below my ears I dont know what to do with, never had short hair before. I caught myself telling my sister "Being bald was easier!" WOW! never thought Id say that. I think being bald removes the denial of the disease but have fun with it! Work that scarf girlfriend!!! Thats what someone told me so I pass it on to you. Sending positive thoughts to you on your journey.
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DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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Old 02-07-2014, 05:46 AM   #15
Aussie Girl
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Re: Nodes are CLEAR! But big haircut tomorrow :(

Guess what! It grows back! I have spiky regrowth now.

I became used to the lack of hair rapidly. I used Buff microfiber tubes because they took about 10 sec to put on. Never used the wig because it was too hot and itchy for our Summer. Most of the time I went bald if I was amongst friends. Too bad if they winced a bit. They got used to it.

Temporary baldness is part of the journey. It is normal to cry - what's happened to you (me, us) is sad and it should be honored by your tears. Other things will make you cry too, but you'll also have times when you'll feel deep joy over little things that you never appreciated so much before. Keep your eyes on the good things as much as you can.

Aussie Girl
__________________
31mm Infiltrating duct carcinoma
Grade 3, ER/PR-, HER2+, Neg Sentinel nodes x 5
49mm field of DCIS
17 June '13: Screen detected impalpable mass, Mammogram neg, US.
25 June '13: Diagnosed after multiple biopsies and MRIs
28 June '13: Left lumpectomey
4 July '13: Left Mastectomy
12 August '13: Commenced TCH chemo
Mid December '13 : TCH finished. Herceptin continuing three weekly.
4 August 2014- Herceptin infusions finished.
END OF THERAPY - YAY!
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Old 02-07-2014, 06:43 AM   #16
roz123
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Re: Nodes are CLEAR! But big haircut tomorrow :(

hair is such a big part of who we are as women - to some it means more than to others
i never had nice hair - thin, went grey fast etc but i did have a good 2-3 days of crying after it came out. After the initial shock wore off i was fine with it - i went through chemo in the winter months here in Toronto so i wore a hat most of the time with a scarf and you couldn't even tell. I had a beautiful real hair wig that i wore when i went out/social functions that i joke to this day was nicer than my real hair (thick, long auburn color)
its just a temporary thing
my hubby just said to me yesterday wow your hair has gotten so long and i barely remember you bald (finished chemo dec 2011) hang in there
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diagnosed aug/11
right breast IDC 2.2 cm LVI
neoadjuvant fecx3, tax and her x3
surgery -pCR 0/2 nodes
25 rads
herceptin x18
tamox
prophy bi-msx with TE's oct 15/12
LD flap reconstruction (PM me if you want the details)
zoladex shots monthly until SOFT studies come out
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Old 02-07-2014, 06:45 AM   #17
roz123
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Re: Nodes are CLEAR! But big haircut tomorrow :(

ps in my avatar pic that my hair 1 year 10 months past chemo
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diagnosed aug/11
right breast IDC 2.2 cm LVI
neoadjuvant fecx3, tax and her x3
surgery -pCR 0/2 nodes
25 rads
herceptin x18
tamox
prophy bi-msx with TE's oct 15/12
LD flap reconstruction (PM me if you want the details)
zoladex shots monthly until SOFT studies come out
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