Thank you ladies for the great advice! Cool breeze I'll take door #3 please. That's my only option in fact. This is what I posted a few minutes ago on the Canadian board at BCO.
Ho ho it gets better....I emailed Laurie Kingston,from Ottawa, she blogs "not just about cancer". Nice lady we met during one of our herceptin infusions. she's same as me HER2 and has been Ned for 5 years yahoo, but last year developed brain mets which removal was successful, yahoo again! She's still Ned yippy yahoo! My reason for emailing Laurie was what I discovered...
Now....I thought yesterday was a shitty day till I was checking Ontario drug rules today
...I'm pretty sure my Onco did try to qualify me that's why he told me to beg...now the Ontario herceptin RULE...if I have progression on herceptin I NO LONGER QUALIFY for herceptin or access to Perjeta period. No herceptin mix with chemo nope..I get dropped and so does my paying for Perjeta.....wow...what a gamble...I don't gamble ������
Onco told me the price for Perjeta is $3000.00 and no compassion rate with hospital or social worker. USA price is $6000.00. 3k is a deal...Now I haven't called the company as they will tell me to send letter to Ontario as well so I'm doing Ontario first. Pharma wants patient demand and pressure put on Province. My onco told me it was WAY overpriced and NOT worth it....but...not worth it for who...my estate....
Well now, I get that the Province wants it so much cheaper, I agree, but it's my only hope to live till there's another drug or cure Ontario is repeating what it did for herceptin and hundreds of women died because Ontario wouldn't pay. Women that had money went to the US for treatment the rest died.
I'm not the only one here in Canada that's HER2, they're using herceptin/Perjeta combo as a preventative treatment for METS with early BC detection. There's lots of promise with the combo. Ontario was one of the last Provinces to fund herceptin, USA was 1998 Canada was 2005. Geez!
So, I have a gamble to make, I have a ct scan scheduled for Dec 4 and Onco appt in jan. I'll get results from my primary doc as I'll kill myself if I have to wait over a month!!! That would solve the Perjeta problem lol!
You think when you're younger that your life changing decisions are soooooo hard....wow, this decision is a game changer for me...blow the house on drugs...crap! When is a good day to pull the plug?? Jim tells me to do whatever I want, he's okay with any decision I make....so let's vote...
What am I worth...there's no guarantees with this drug but if I don't try before progression I lose this window and if it works how long can I afford to live before we have to sell the house....sucks. Xoxo Jo
Hybrid Mode
