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Old 10-30-2013, 07:20 PM   #1
Cat
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Posts: 184
Re: NEDenise Downer Alert!

I'm so sorry to hear you feel so crummy. You are an inspiration and I hope you don't feel you always have to be "up". As far as steroids I have no doubt the steroids could wreak havoc on your body. I was on much smaller doses for far less time and I felt like crap. Withdrawal was horrible. I give you credit for all of this and strength to get through it and get your adrenals back. The only good thing was my ankles were thinner while on it. Go figure??? I hope you have something good from it. Hang in there. We are tougher than this thing, no matter what we are dealing with. Sleep when you can and what you need.
Lots of hugs, Cathy
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3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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Old 10-30-2013, 08:07 PM   #2
caya
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Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
Re: NEDenise Downer Alert!

Aw, Denise sweetie, you can rant and rave and vent all you want - I can only offer good wishes, prayers and cyber hugs - and also, even though it's not your birthday - eat some chocolate, it's good for you!!!!


all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 10-30-2013, 08:16 PM   #3
Ceesun
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Posts: 869
Wink Re: NEDenise Downer Alert!

Denise, Just want to say I care about you, too, and hope all goes well for you in every aspect of your treatment. Chin Up, Sweetie...Hawaii is waiting for you!!!! Ceesun
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