HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 09-05-2013, 09:17 AM   #1
martie1228
Junior Member
 
martie1228's Avatar
 
Join Date: Aug 2013
Location: Maryville, TN
Posts: 1
Re: Who's her2 and lobular...??

New here. Will have round 3 of DD AC next week. Start Taxol/Herceptin in October. Glad to have found this!!! Am lobular, triple-positive, and pleomorphic. Stage IIIa. Tumor 7 cm (my family practitioner took my complaints of nipple changes seriously after GYN didn't at annual exam several months earlier), no nodes as they had been removed with previous BC (tubular and DCIS) 16 years earlier. BMX with positive posterior margin. Can't have radiation since I already had it. Am greatly encouraged reading through this thread!!! I guess it's just now starting to settle in as to how much of a fight this really is! I know, I'm a little slow at times!
martie1228 is offline   Reply With Quote
Old 09-05-2013, 12:17 PM   #2
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: Who's her2 and lobular...??

Hi Martie!

You went 16 yrs NED... Amazing.

And now, you have this odd signature bc thanks to your family practitioner! Geez. So often hear how one doc dismisses our concerns. We know more about our body than they learned throughout their medical training and practice. Our body's talk to us!

And we can talk to them. Give them directions. Keep telling your body HEALTHY AND WELL. NO MORE CANCER! It'll get it's act together.

So sorry you're going through this, but you seem like one who will prevail!

Many wise Sisters on this board, full of compassion and experience. You have found a great ally, Martie!

Keep listening to your Inner Voice (vs the voice in your head). It is your Spirit talking to you. It is a great sage.

When you KNOW a thing, it will come to be. So, may you KNOW that you will survive and thrive!

Love and Light,
ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:41 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter