My oncologist thinks it might be the fiducials. I didn't go to the ER (some things never change) so it's hard to say. I will have yet another CT this week (I think it's #25 now!) and they can look and see if anything is going on.
What happened was I had severe pain in the liver starting Saturday, took a bunch of dilaudid which did no good, and then started vomiting. I vomited for a while and did the college trick where you fall asleep on the bathroom floor with a roll of TP as your pillow. LOL. I woke up, thought I was safe and went to bed, but the vomiting started again. I keep a bucket under my bed now for that. Well I finally fell asleep....and did I ever. From Saturday night to Wednesday morning I was asleep. Occasionally woke up to take a sip of water, which was so exhausting I had to sleep for another five hours. (I am glad my youngest was not home, I hate it when he sees me like this although he's less scared as time goes by)
Wednesday I got up, shaky and weak and went to to the doctor, a regularly scheduled appointment. They gave me perjeta, herceptin, and zometa, but no chemo. I asked the doctor "Should I have gone to the ER?" And he said, "Why, so you could sit in their waiting room for ten hours and then be sent home?" LOL, I love my oncologist, we are totally on the same page. He said when this happens (and it has happened before without the severe pain and to a lessor extent) it is time for symptom management.
But he also thought the pain, a new component, could be fiducial. I will see what the radiation oncologist says on Tuesday anyway.
And, one person cares what my house looks like - me! And, they have a three month old baby, I can't have them walk into a house full of dog dust and spent tissues.
My house was built in 1946 so is not easy to clean in the first place. Sigh, I would just love to move and live in a new house. Oh well, not now.
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http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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