HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 06-14-2013, 05:42 PM   #1
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,193
Re: The power of your thoughts

whew ... ok ... we're still a couple. I was a bit worried.

Tell me what time and time zone this is taking place and
I'll send you some good vibes.
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
PinkGirl is offline   Reply With Quote
Old 06-14-2013, 10:56 PM   #2
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: The power of your thoughts

Dear Andi -
I will try to add my "thoughts" at the appropriate time. So they see some artifact on a scan that wants a closer look.

It will just be a little blob of nothing. A cyst or some such bothersome bit of nothing. Think of it as anti-matter and it will be nothing ...
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 06-15-2013, 09:38 AM   #3
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: The power of your thoughts

Exactly Steph. Some lymph nodes are enraged/inflamed, a la recent major IBS bout. Nothing more. "Soft tissue" sounds encouraging to me. "Increased mesenteric fat stranding" -- did the Radiologist call me FAT???!!!

However, darn it, they can't do a needle biopsy as w/my liver. Minor surgery is involved w/abdomen. Out patient same surgery, maybe they'll keep me overnight. It is not cancer. I do not have cancer. I had cancer many yrs ago.

Already checking my stored list for pre-surg. Will need some pre op tests. A bother. Need to stop some of my supplements. I think E, Omega, ginkgo, and of course aspirin. No Advil. Fine.

Going Monday to see surgeon. Much fuss over nothing.

Although I do think I have an umbilical hernia. Self dx from Internet. Tehe. My SIL/ob gyn concurs and says to tell them about hernia and they can fix that at the same time, which I've been putting off. Doesn't hurt, doesn't interfere w/bowels, no biggie. Just a tiny bulge above the belly button. SIL says ask to have it done laprascopicly. Sigh.

Years ago my TMs were rising (2 yrs off of Vit H). Concerning. Onc says we'll wait another 3 mnths. I said, No! Well, when then, I said, Next week. He said, Let's compromise, One month. Done. TM's even higher. Not my normal. Wait another month. TMs out of normal range! Terrifying for me. One mnth later -- 13.

Nurse called to tell me. I said, I don't believe it! She said, neither did doc or me, so we retested. 13...!!!!!!!!!!!!!

Plummeted.

In retrospect, I had a virus/flu thing that lasted 3 mnths prior to this. My body must have been all messed up, naturally and my TMs were up. If I never had bc, I wouldn't even have been checking my TMs. Lots of pp must have messed up TMs after a ridiculously long episode of illness and don't even know about it.

If I didn't have scans on Thurs, having had 2 days of major IBS issues, I could have just sailed through. Timing. It is everything.

TMs have stayed put for years. As directed by my thoughts. Remember -- the power of thoughts? Your body hears everything you think, say or whisper!

Will do what I must. It'll be fine.

Not allowing my brain to even entertain other possibilities. But what if -- banned... Will I have to -- not given permission to occupy space in my brain.

Babysitting tonight. Smiling. Feel fine. Well, a little anxious, but will move forward, one step at a time...

Thanks for love. I send it right on back to you all...

Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:58 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter