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Old 06-06-2013, 04:17 AM   #1
dawny
Senior Member
 
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
Re: Steroid Smackdown Round 3!

Lol Denise., glad you like the game, it is very fast moving. There are some very nice boys (check out my teams Geelong Cats' Jimmy Bartel and Joel Selwood, lovely young men!). Maybe your boys will play it with their friends and then you can get a team together, you have time for that, in your spare time, don't you! Lol. Now Marie's Sydney Swans maybe current premiers, but they are still newcomers (lol, I think the y have been around for thirty years or so!) so I think thinks it's Geelong' year again this year, we seem to do well every two years.

Anyway, see what's happened, Marie and I couldn't help ourselves, could we? We had to get a dig in about our own team, Amanda will be long shortly, with her two bob's worth!

What I wanted to say was, fantastic news Denise, and throw away those scales, mine don't work either, I think it's a conspiracy!

Love Dawny. ( see the "y" on the end of Dawn, like Marie says. I was born in England, and was quite horrified when people started calling me that!)
Xxxxxxxxx
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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Old 06-06-2013, 03:03 PM   #2
Cat
Senior Member
 
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Join Date: May 2010
Posts: 184
Re: Steroid Smackdown Round 3!

Denise
Your wonderful sense of humor and gentle caring have kept me sane at times and I thank you for that. I would have loved you as a teacher for my kids and your students probably love you too.
I have not needed high dose steroids but I can imagine how horrible it might be. I know what the dex does to me just getting it at chemo. Weight is a frutsrating thing and I have to keep convincing myself that I cannot have the same dream of looking like Jessica Alba and be content to look better than Buddy Hacket! You're probably too young to know who that is, showing my age?
Anxious to go look up AFL!
Prayers to you, Cathy (I already have a "Y")
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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