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Old 05-14-2013, 01:03 PM   #1
Kellennea
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Join Date: Sep 2011
Location: Mt. Prospect, IL
Posts: 177
Re: Thickening of the uterus lining

I had the same issue from Tamoxifen... thickening of the lining, also ended up with a 6mm "mass" on my right ovary.

Ended up having to have a full abdominal hysterectomy, ummmm... pretty much for no reason. Turns out that my "mass" was just me ovulating almost 2 years after chemo. The spotting that I started having on the day of my surgery, was me getting my period for the first time since chemo. Mistakes made all around.

Just keep an eye on it with ultrasounds
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10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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Old 05-15-2013, 02:01 AM   #2
Jackie07
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Location: "Love never fails."
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Re: Thickening of the uterus lining

I had requested for hysterectomy/oophorectomy two years after my recurrence and was approved based on personal and family cancer history. After the surgery, the surgeon told us that there was 'hyperplasia' in the uterus - pretty sure it's the thickening of the lining of the uterus, a side effect of Tamoxifen.

Been feeling quite well and have put back on some needed weight. You might want to get tested for the BRCA genes if there's family (including blood relatives) cancer history involved. The cancer incidents in my family seem to match the description of the HNPCC http://www.nature.com/nsmb/journal/v...b.2511_F5.html cluster which involves colon cancer, brain cancer, breast cancer, Non-Hodgkin's Lymphoma, cancer of the reproductive organs (ovaries, uterus), and digestive tracts ...

My BRCA test had found a BRCA 1 Variant of Unknown Significance ...
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Last edited by Jackie07; 05-15-2013 at 02:49 AM..
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