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Old 04-30-2013, 05:03 AM   #1
NEDenise
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Location: Philly Suburbs
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Re: Rich66's Mom passed
Rich,
I'm so sorry for the loss of your precious mom. The gap in your days...where she used to be....must be so painful for you. I know your happy memories will comfort you as you heal...but now, the I'm sorry you're hurting.

You are and have been the model son! I only hope my own boys are as devoted to me in my older years.
I hope you'll continue to stop in, and share your wisdom and humor with us from time to time.
Wishing you peace...
Denise
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1/11-needle biopsy
 2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
 3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
 4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
 8/26/11 finished Taxol!!!
 10/7/11 mastectomy/DIEP recon
 11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
 1/12 Low EF/Herceptin "Holiday" :(
 2/12 EF up - Back on Herceptin, heart meds
 4/2/1212 surgery to repair separated incision from DIEP recon
 6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
 7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
 “ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 04-30-2013, 06:24 PM   #2
1rarebird
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Re: Rich66's Mom passed
Rich---As one of the guys here on this board I know how hard it is for you to loose your mother. It happened to me not too long ago and the loss is awful to feel. I know your pain and wish I could say something to help ease it for you. But I can't--no one can. I can say thank you for all the insightful postings you have made here to benefit us all. Peace you deserve as well as good luck in future.----bird
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Male Breast Cancer, DX 5/15/09, IDC, STAGE 1, 1.7 cm, HER2+++, ER+(95%)/PR+(75%), Ki67 40%, grade 3, 0/5 nodes, TX: mastectomy, TCH finished 7/19/10, radiation 6 wks., Tamoxifen on going, bisphosphonate 24 mos.
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Old 04-30-2013, 09:16 PM   #3
Kim in CA
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Re: Rich66's Mom passed
Dear Rich,
I am so sorry for your loss. Such a hard thing to lose one's parent.

Thank you for all your efforts and contributions to all of us over the years. It's people like you that make this such a special place.

Warmest regards,
Kim
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Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.


5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.

9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .

11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!

7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!

June -Dec 2004 UW Vaccine Trial.

7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.

Brain MRI @3 months NED!

2006-2011 brain/body still NED

8/04/11 Taking Herceptin break, will monitor with tumor markers.

6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.

7/23/12 CA15-3 now 49.3
Her2 Serum 26.8

8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49

11/7/12 Add weekly Taxotere for 4 cycles

2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.

November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!

Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara

Jan 2016 Begin Kadcyla

March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla

November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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