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Old 04-02-2013, 08:19 AM   #27
phil
Senior Member
 
Join Date: Nov 2010
Posts: 393
Re: T DM-1 Activism

Kerry's people were helpful in beginning for our personal issues, 2010- 2011 . spoke w/ Co. and FDA , brought us to HELP at time. Sen. Harkins staff. It died there . We asked Sen Kerrys' staff 3 times for a face to face mtg, told he was too busy. he is now Sec. of State , so now truly involved with global issues.
We are trying to contact his successor, Sen. Elizabeth Warren . Perhaps she and other women in Congress will be more pro-active with This FDA than the men . Sen Kay Hagan from NC has seemed to want to reform FDA drug appr. process.
Google the US Congress , HELP Committee. If u see any names there that represent you, call their office, meet . You , as a Perjeta / TDM-1 success story, can have a role in pushing the FDA and co. to give perjeta appr. to Stage IV sooner . at this rate , when will it be fully appr. ? this yr at all ? always use Lorraine as a T DM-1 example too, ( we know others even longer ned than her ) , we will talk with anyone , anytime.
The LA news story can be found at www.nbclosangeles.com, " New Breast Cancer Drug Gets Woman Off Her Death Bed "
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