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Old 03-06-2013, 12:51 PM   #1
BonnieR
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Join Date: Jun 2007
Posts: 2,210
Re: I think cancer treatment can be in humane

Amen, Debbie! I will add that my cancer center has a free Navigator Program which I trained in It is persons in recovery helping newcomers navigate through treatment. The amazing thing is how few patients want to participate. Most turn it down! So that is the perplexing other side of the coin.
Linn, never think you are "feeling sorry for yourself". You are entitled to everything you feel. So glad you got the treatment break and avoided the storm at the same time. Serendipity!
I have a supportive husband but have heard many stories of spouses actually leaving when they are needed most. But I understand your wishing. I hope you have a network you can call on for help. And that you have suggestions of things they could do for you. People want to be useful but don't always know how
We are always here for you. Keep the faith!
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 03-06-2013, 03:47 PM   #2
StephN
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Location: Misty woods of WA State
Posts: 4,128
Re: I think cancer treatment can be in humane

Linn -
Hopefully the Herceptin alone will not cause added side effects. Most of us get through it quite easily. Having had to go for daily treatments, I am glad your doctor thought it was ok for you to have a week with less running around!

The burn from radiation is actually rather deep. I had a triangle in my upper front right quadrant radiated, but actually had a burn coming through on the back of my right shoulder opposite the triangle! It looked like a medium sunburn, and there was NO other way I could have gotten it as I was keeping covered up, and out of the sun (such as we have here in the Misty Woods).

The pain I had was more like an ache and sore muscles. My massage therapist gently worked it when the skin was healed.

Keep repeating: Every day, in every way, I, Linn (or name), am getting better and better.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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