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Old 10-23-2012, 03:21 PM   #1
Nancy L
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Location: La Quinta, Ca
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Re: Chemotherapy Permanent Hair Loss

I am one of the unlucky taxotere hair victims. It happened back in 2005 and For years i would ask various oncologists what happened. All they would say is "this is not suppose to happen". I thought for years that I was the only person this had happened to until I had my first appt with Dr. Slamon in 2009. He told me between 1 to 3% of those who get taxotere never get their hair back. I struggled with being bald until I found the hair system I wear today.
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Old 10-23-2012, 04:04 PM   #2
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Re: Chemotherapy Permanent Hair Loss

Look at this old thread! Wow, till I realized, I was totally thrown.

Nancy, Did I miss it? What hair system?

My hair is way thinner and I have male pattern baldness (loss of a hairline on top and upper sides). Not attractive. I cover as best I can, w/what I have been fortunate enough to recover from 8 mnths of Taxotere (back in '98). Used to wear a headband and everything back sometimes. Now -- not. Too weird looking.

My oily hair is now super dry. I moisturize w/ev shampoo, use leave in conditioner daily. My curls are back. Cowlicked too.

No eyebrows. Few eyelashes. Draw brows on every day, and say, Thank you for my life! Spend 10 minutes w/mascara primer and various mascaras to plump up what I laughingly call my lashes.

So instead of plucking brows, I must now tend my moustache. What's up with that?! Adding insult to injury I think. (Had to share...) We all need a hug.

Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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